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  1. Arisoned

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    I’ve noticed it seems to work best for those who start really low and keep to a really low dose rather than go in at 4.5mg or work up to that. Starting low at 0.5ml and working up at using that dose every two weeks seems to be successful for most.
  2. Arisoned

    On line ‘survey’ re UK CFS/ME specialist services

    I have emailed ServiceSurvey@nbt.nhs.uk and asked them to remove my answer and confirm that they have done so. They have done this. I have had an email this morning confirming that they had 1000 responses and the survey is closed so maybe they were anticipating more? Worth a try.
  3. Arisoned

    ME advocates & groups you can endorse (=vote for) in the WegoHealth awards 2019

    Thanks Tom! I did too but couldn’t find them! Thank you
  4. Arisoned

    ME advocates & groups you can endorse (=vote for) in the WegoHealth awards 2019

    Great thread - thanks so much. I think Invest In ME are up too?
  5. Arisoned

    WHO ME/CFS coding - April to May 2018

    Suzy, so sorry and cross to read this. Thank you for all your hard work and all you do, it’s truly admirable. This is really the last thing we need right now, as far as I can see you’re the only person that knows anything about this stuff, firing you ludicrous. I’m sorry.
  6. Arisoned

    Action for ME has joined S4ME

    Also banned from their Facebook and Twitter and didn’t break any of those rules.
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