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Also anyone know if their Doctor can actually prescribe now?

Dr Anna Barham? What happened to Dr Claire Taylor?

Does anyone know what happened to this? I remember the observatory being discussed a lot, did it become Decode? Establish CFS/ME Observatory for epidemiological & social research £503,028 on 28 Feb 2006 in City of Bristol Nothing on a search of AFME’s website (lots of information seems to have...

I’m so glad there are people out there that are better/smarter than me. @cassava7 thank you so much for all you did here trying to bring this to DWME’s attention.

This is an unofficial chat forum, not an official forum representing patients views.

Thanks for this. Anyone know when will the minutes will be published?

Self promotion always wins out with this disease. Its not and never is about patients sadly.

And trying to dig into ACE’s

Eyeroll “Staying ahead of Dr google” in other words they realise that their model is useless and patients don’t need an intermediary because we have forums to share free information, like this one! There is no need for patients to pay for “practitioners” to pay a third person, an unqualified...

Elaine Wilkins says in various places she had parasites and thyroid issues so no, she didn’t have ME.

This is really a pyramid scheme to recruit practitioners to retain patients through a monthly payment scheme and sell training courses. When they first started we were contacted by someone who knew Elaine Wilkins and Kelly Oldershaw and we were told that neither had ME and this was a ploy for...

It’s been taken down now but -

Did Caroline Lucas ever reply to your last letter Peter?

Yeah - dodgy. Stop promoting them and talking about them, and they may go away. We have already had action for me and the me association promote them which has caused traffic to go to their website, so free referrals for unsuspecting patients. Leave the interviewing to people with no financial...

Clever way to start promoting yourself without promoting yourself. Start interviewing researchers and charity trustees that have recovered and get traffic on your website which you paid for, whilst advertising your book and your “coaching services” which you have no qualifications for because...

That is a great letter! Thanks to everyone who contributed towards putting it together.

Also daytime dosing works fine if it interferes with your sleep.