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I read Jake's bio on his website again: https://www.fatiguepsychologist.com/ He is very into the book "The Immune Mind" and how stress causes ME, predictive processing and the so called "cutting edge of neuroscience" and how he can treat ME and LC. This all sounds like the recent sojourn into...

Yes it is a thing but likely to also be the basis of toxic positivity which I especially see in the wellness industry. It was not part of mental health practise when I was working a decade or so ago. Taken over by pop psychology and thousands or people who have become "health coaches" (cough -...

I do wonder what is going on behind the closed doors of the RNZCGP.... Many members follow the NICE guidelines (eg my GP is the clinical director of about 20 GPs for her primary health care clinic and we have discussed briefly my concerns about the CME conference and Bruce's promotion of LP)...

yes,@forestglip there is a more extended version of guidance around the doctors and health-related commercial organisations as you have linked to. I have copy and pasted just a few paragraphs in this document. Bruce clearly has conflicts of interest, potentially in his private practice which I...

No, not specifically a conflict of interest, though this is debatable. Some doctors have done medication trials as part of research and the drug company paid for the medication but the trial was run by their publicly funded department or an academic department through a university. If the...

My head exploded and heart sank this morning reading this paper and so have had to put all my thoughts down here in the forum to start to process this. I don't do quotes so all things in the paper are quoted in italics. I may have misinterpreted things as my cognition was failing writing this...

I can understand your position regarding doctors but I personally think it is better that I state my negative advice as a doctor rather than a person with ME, for transparency sake. I do not give my advice lightly on the potential problems of self sourcing and taking thyroid medication in a way...

Not sure how novel this hypothesis is as there are many other researchers active in this area: https://www.stanleyresearch.org/patient-and-provider-resources/toxoplasmosis-schizophrenia-research/treatment-approaches-to-toxoplasmosis-and-schizophrenia/ Interesting that some antipsychotics and...

Firstly, being a doctor, I think it is very unwise to take thyroid hormone to treat ME/CFS. There is no good evidence that it is helpful. Playing with any hormone without good endocrinological examination and investigation is not a good idea. The hormone system is very finely tuned and is...

"The prospect of making sense of your supposedly “medically unexplained” symptoms as a potentially reversible state of dysregulation and dyshomeostasis across multiple bodily systems lends itself to possibility, hope, and agency." Sounds like he is dreaming up a new therapy or just doing a...

4-5 hours of brainwashing, a 26% drop out rate and a treatment effect that did not meet clinical significance. So not the success story they are telling the world. And to ignore the patient organisation saying that pwLC have said this CBT intervention has caused harm and Soraas saying that...

I have an Apple Ultra 2 that monitors Sp02. It also monitors respiratory rate whilst asleep. My lowest blood oxygen was 78%, but my normal range is about 90-100% with a few below in the mid 80's. Body position sleeping can lower your levels (sleeping on one's back) so I am presuming that is...

I can only speculate on what may be going on, I would need to interview the person to discuss the emotions and how/if they related to the procedure. I did some reading on tilt tests and emotional outbursts has not been reported, perhaps in children due to fear and anxiety of the procedure. It...

If people find this useful to process the trauma they have gone through with their LC diagnosis, good for them. It is quite common to do these type of activities in mental health workshops. I think often being in a group and sharing feelings and thoughts, is as useful as this type of...

I think a patient registry is a good idea, the Australian one is run out of La Trobe University, Melbourne. I was on their registry but this is now only really useful for Australians as NZers are now not able to take part in their research. I think selection bias is still an issue for any...

It would be interesting to know why Simeon Brown presented the petition on ANZMES behalf. Could it be he just accepted the petition at the door because he was the duty MP of the day to accept petitions? or he has a genuine interest/concern for us? Although Simeon Brown appears to be taking on...

Really disappointing when researchers start promoting this type of course by yet another patient who has" fully recovered from CFS" and has now transformed themselves into a "Wellness" Coach and backed up by a rehabilitation specialist doctor - the "expert". ( We have a researcher here in NZ...

"Post-exertional deterioration" rather than "malaise" comes to mind as a simple term most doctors might understand, perhaps not the exertional part if they reject this concept right out. And then perhaps further elaborating that it is not just physical exertion, it can be cognitive which may...

I agree, NLT is a useful screening tool for GP's and patients. It is easily accessible and can be done at home with another person doing the BP measurements and timing. I did mine at home and my private cardiologist found it very useful as it is very difficult to get a tilt test in a public...

The conclusion of the paper Our results confirm that there is no causal relationship between MDD and ME/CFS. While our study does not support a definitive causal link between them, the questions raised in this study are indeed worth exploring in future research to enhance our understanding of...