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Reading the Wikipedia article on neuro-linguistic programming, I found this interesting section (bolding mine): This makes it all the odder that so-called “brain retraining” programs like the Lightning Process, as well as other “holistic” approaches, enjoy credibility as treatments for ME/CFS...

Perhaps it is useful to look at other diseases with an established pathophysiology. As an example, various treatments will work for some, but not all, people with the same subtype of MS (e.g. relapsing-remitting) or mitochondrial disease, such as low dose naltrexone or L-carnitine. This does not...

Viral persistence is possibly the longest standing hypothesis for ME/CFS and, generally, post-acute infection syndromes. Proponents argue that it may only be happening in tissues such that a blood draw would not be able to detect it. I am personally not endeared to this hypothesis, but the only...

Perhaps this contradiction is worth highlighting in a letter to the editor.

@JohnTheJack would surely approve!

The study protocol, including a description of the intervention, is available on ClinicalTrials.gov. According to it, the last booster session was at 9 months (week 36) whereas data collection was at 12 months. The estimate of the mean between-group difference on the fatigue impact scale is...

In theory, yes, but in practice the last thing people with ME/CFS need is that TCM trials siphon funding away from drug trials.

It is relieving to hear Dr Bateman’s sensible criticism of this survey, especially as she is and has been a principal investigator of many studies on ME/CFS and long Covid.

Perhaps the journal should consider inviting other authors for an opposing viewpoint that attempts to lay out why some academics, among which eminent ones, are so keen on psychologizing long Covid and post-acute infection illnesses?

One of the issues that has been consistently replicated by ME/CFS biomedical research groups is orthostatic intolerance (including the CDC), although it seems peculiar or unconventional in the sense that many people with ME/CFS experience OI without heart rate or blood pressure issues. I would...

It seems that Hilda Bastian is no longer on board? “A former member of staff helped to set up the Independent Advisory Group, which is now self-managing.”

From Dr Eric Topol: “New @Nature Important discovery linking the β-receptor, sympathetic nervous system, with T cell exhaustion, that has implications for #LongCovid, POTS, post-viral syndromes & various cancers (by blocking β signaling)”

The authors included “education” as an active control even though it only consists of receiving a leaflet on pain management techniques and not benefiting from the same therapist-patient interaction, so it does not seem surprising that they still found a small benefit for pain intensity for CBT...

Explore is a quack journal so being published there doesn’t lend the authors any credibility - quite the opposite. https://en.wikipedia.org/wiki/Explore:_The_Journal_of_Science_%26_Healing

As expected, the patients in the exercise group got fitter but this did not improve their postural orthostatic tachycardia according to the 10 min stand test (which the authors omitted to mention in the abstract): Neither their dysautonomia related symptoms nor their overall quality of life and...

The first sentence of the section “Can any infection lead to ME/CFS?” reads “There is actually no proof that multiple different pathogens can cause ME/CFS.” Yet, the review on post-acute infectious syndromes by Choutka, Iwasaki et al that was published last year in Nature Medicine extensively...

I suspect it is an unfortunate artefact of translation as some online translators translate “malaise” or synonyms to “discomfort”. The authors are German so it is possible that they had to translate parts of their manuscript.

It is certainly interesting to see Cochrane react this quickly to a proposed treatment for long Covid, presumably under the impulse of Prof Garner, compared to their dragging their feet on the review of exercise for CFS.

Unfortunately, Whitney has plunged back to his pre-2020 severity level, before he went on Abilify. https://www.whitneydafoe.com/mecfs/?post=back-in-chains

It is unexpected to me that this paper has been published in a MDPI journal, given that CLoCK is a large UK government-funded study. Presumably the authors, among which are eminent academics, would not have had too hard a time getting published in a more reputable journal?