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If it's the same post I remember, it was a verse from a Bob Dylan song, Masters of War, and the verse was aimed at Wessely: https://www.azlyrics.com/lyrics/bobdylan/mastersofwar.html I read some time later that Wessely appeared on a radio interview in which he mentioned that post in the...

Should have been titled 'Lots of myths and no facts'! The authors come across as sad, desperate folks pushing their outdated & debunked BPS wares no matter how foolish it makes them look to others.

I had similar experiences to @Peter Trewhitt and @Kitty in that I too had a period of remission - got ME in 1983 and after 4 years recovered enough to work, although only part-time, and have a social life, but needing to keep outings short and undemanding. After another 3 years I became what was...

Have just read the article, it's pretty good. About the use of 'relapsing/remitting', I get the impression that the author erroneously used the wrong term, they should have said 'fluctuating'. Am pretty sure 'relapsing/remitting' means recovering and staying well for months or years, then having...

As what they have learned in all that time = 'nothing', it will only take a few seconds to cover those 'highlights'. Could be the shortest lecture ever??

The link is broken due to some extra spaces in it - I removed the spaces and got this, which does work: https://www.canada.ca/content/dam/phac-aspc/migration/phac-aspc/publicat/hpcdp-pspmc/28-4/pdf/cdic28-4-4eng.pdf I wonder how they obtained that figure? The author needs to be taught the...

I'm on Firefox and was unable to access the survey at first. I use NoScript, UBlock and Privacy Badger to block unwanted stuff, and found that Privacy Badger was blocking it as a 'tracker'. I set Privacy Badger to allow it through, and then it worked fine. Hope this might help anyone who also...

Oooh, thank you, got my email now. Looking forward to seeing how the study pans out! A big THANK YOU to all involved.

You could look into buying a working 2nd-hand one on eBay - I did a quick search and found quite a few: https://www.ebay.co.uk/sch/i.html?_from=R40&_nkw=(answer,+answering)+machine&_sacat=139968&LH_TitleDesc=0&rt=nc&LH_PrefLoc=1 . We still stick with our old answerphone, even though BT recently...

On the occasions in which I've been given a questionnaire like those discussed here, I just simply answer '0' or 'No' to every question, LOL. I just don't feel inspired to waste my minimal energy mulling over stupid questions and dignifying them with answers!

And, dripping with stupidity. ME has such subtle symptoms that we may not even know we have it? In what alternative universe does that happen? So, how does this 'clinic' know the person has it, then? And, we choose to stay indoors? We get a choice? Indeed dreadful and they need education quick...

From the article: How ironic coming from someone who was so vocally against strengthening patient rights to influence their care and treatment and to choose who supports them, when it came to ME/CFS...

Just remember, we're talking about the guy who calls the PACE Trial 'a thing of beauty', so his methods may not have been up to scratch with everyone else's... But yes, a shame the serious researchers didn't find anything either.

I lost touch with what was going on in ME research after 1990, because I had recovered, thought recovery was permanent, and wanted to just forget all about that horrible episode of my life. Am glad to hear that a brain blood flow study did finally get published, although it's unfortunate no...

Yes, there was little or no productive research into cause in the 1990s, because the psychs took over in about 1988. I remember in c1988, after I had recovered, reading an article about some psychiatrist who said, regarding the research into T-cells as respects ME that was going on at the time...

They were the reason, in that all government funding for biomedical research stopped and all was given to psych research instead. (Eg, PACE which wasted £5 million of taxpayer money that would have been better spent on useful research by real scientists.) What little scientific research still...

Heh, yes, I remember it being called Royal Free Disease - I was a toddler at the time of that outbreak and remember hearing it referred to as that on the news and thinking what a strange name it was. (Now I'm showing how ancient I am and why I despair there being a biomarker & cure in my...

Thank you for the good explanation. I guess what it comes down to, is that the original term ME no longer means what it used to (eg, the Ramsay criteria that I was diagnosed by was used then, which is quite different from what came later: https://www.cfids-me.org/ramsay86.html), Post Viral...

This is puzzling me too. When I got ME in 1983 it was alternatively known as 'Post-Viral Syndrome' and defined as being the result of a viral infection (in my case, a heavy respiratory virus). What else is it defined by? (I know 'fatigue' has been thrown into it now, but that really is too vague...

Oh my gosh, can they not hear how stupid that sounds/is? Why not "Drinking bleach may help some sufferers from long Covid but, unless we fund research to test it, we will never know for certain." Or how about "Walking off a cliff like lemmings may help some sufferers from long Covid but, unless...