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Absolutely. Twitter is what you make it. If you follow good people, you'll see good posts. If you follow horrible people you'll see horrible posts. I see a few horrible ones that get retweeted by good people in order to show how horrible those posts/posters are, which is fair enough. I mostly...

Absolutely right. When improving from any illness, people will simply instinctively start trying to do a bit more and if that goes OK, a bit more, and so on. No need for multidisciplinary teams, special customised physiotherapy programmes, encouragement by therapists/psychologists/life...

It might help to know that many ME/CFS patients (and other patients too, for that matter) were ourselves doctors, scientists, researchers, statisticians, technicians, or similar professions before we got ill. Becoming a patient doesn't cause us to lose our qualifications, our experience or our...

Hooray, excellent to see this important response now freely accessible for all to see. :thumbup:

Oh man, NICE's response is so good to finally see after all this time. It's all so well-said and reasoned. I fervently hope it will become un-paywalled but it's great to see full copies of it in various other sources in the meantime. This really needs to be widely seen. And yes, I specially love...

Ugh, I saw this on Twitter this morning and was utterly disgusted. I had to control my 'effort preference' to refrain from using a lot of rude words in response to it!

Wow. Just watched it and it was amazingly sympathetic, couldn't believe what I was seeing. It was presented as being critical to the idea that ME was a made-up illness or 'all in the mind', but that it is rather a real physiological condition that is triggered off in some people after a virus...

Yes. However polite, reasonable and well-evidenced a message, he will inevitably twist it into 'anti-science militant loony attack on beneficent scientist just trying to help those poor patients'. After all, this is the guy who claimed that a verse from an old Bob Dylan song quoted in someone's...

Yikes. The number of customers who said the seeds have fallen off and ended up in their ear canals is very worrying. It's bad enough that they're useless rubbish, without the added issue of their being potentially dangerous to the inner ear.

Well then, why not actually TALK to the patient and ASK them which came first? Simples. :banghead::wtf::grumpy:

There's a NICE care plan?? This is the first I've ever heard of such a thing. This exactly. My care plan would consist of 'Do nothing'. Well, at least then they won't be doing actual iatrogenic harm, such as CBT/GET, so there's that. ETA: Ah, thanks for the link, @MrMagoo , interesting to see...

I've just completed the survey and to be honest, it really doesn't have any relevance to the disease ME/CFS, or any other chronic disease, at all; the questionnaires used in the survey are for asking whether someone has psychological issues, entirely divorced from whatever their physical health...

Well, as Trudie Chalder was one of the authors of this piece, of course she would find her very own CFQ a valid and reliable tool. A remarkably flagrant case of marking one's own homework there!

Oh FGS just stop, please stop, aaarrghhhhh. Enough of the 'studies' on how people with ME worry or are anxious etc etc etc ad nauseum and how 'further research is needed' to continue 'studying' this pointless BS. :yuck::dead::ill::wtf::banghead::eek::emoji_face_palm::emoji_scream: /meltdown

Ah, thanks, so she was talking about Chronic Fatigue Syndrome, then, not chronic fatigue. Ugh.

What shameless BS. By 'chronic fatigue', is she, as so many other BPs-ers do, using that as shorthand for Chronic Fatigue Syndrome aka ME/CFS? If so, a) she's lying because that was never found to be the case, and b), I'd like to let her know that every one of us who suffer from this wretched...

The summary looks good - the author has ME herself and is aware of, and critical of, PACE and the BPS belief systems as regards ME, and she cites the Epistemic Injustice paper by Keith Geraghty et al and the Carolyn Wilshire et al re-evaluation of PACE. It would be interesting to see what the...

Having worked for the NHS for 15 years, I saw plenty of equally rude/unprofessional correspondence during that time - including ones to me or about me! It's common behaviour in the NHS, sadly... (Or was, when I worked for them. Not sure if things have improved since then, but I somehow doubt it.)

Yes, 100% spot-on as regards all three points. At the time, I didn't know who 'Simon Wessely' was, so I didn't know he was a psychiatrist. I did think it strange that the patient was being referred to see a psychiatrist in our unit, it made no sense to me since ME was/is a biomedical illness...

We're currently having a clear-out and packing in readiness for a house move, and among a bunch of old papers I found this copy of a letter from back when I was working at a psych unit in the 1990s. At that time, I didn't yet know who Wessely was, I just found it interesting because it was about...