Search results

  1. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    That is totally untrue. If GET is about stretching your limits, it isn't in your interests, first of all, to say that one of the interventions you did in your study was to explicitly instruct patients not to go over their limits. I've experienced a few CFS practitioners who've applied GET, and...
  2. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Well, the statement that the meta-analysis makes about different types of CBT and the distinctions between them that have been used is such a bland and straightforward statement that it's incredibly unlikely it's wrong. It also wouldn't suit any psychosocial advocates for the meta-analysis to...
  3. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    I don't see what's wrong with improving sleep hygiene. I'm pretty sure everyone agrees that's a good thing. And I don't see why on earth that meta-analysis would lie. There is no reasonable methodological reason or motivation the meta-analysis would have for pointing out those different...
  4. P

    2008: Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness, Barker

    Well, sociologists don't know anything about medicine, and there's loads of questionable theories that float around sociology. Sociologists really get off on any theories they make that sound mildly plausible, and really have a thing for trying to make themselves relevant.
  5. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    That's only one part of what the paper says their CBT involves, the other parts including "sleep-wake cycle disturbance management which sought to optimise sleep hygiene, notably to minimise daytime napping and to ensure an unbroken, regimented night-time sleep routine; and neurocognitive...
  6. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    That isn't true. Sure, the PACE trial focused on more of a denial type of CBT, and many others have too, but if you look at the full text of some other studies of CBT in CFS (in the methodology section), the kind they use is can be more of the coping and managing kind. (There's also a few that...
  7. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Well in most of the cases with the physical illnesses, they just think it's a bit helpful, and I don't think they're saying anything about whether it's psychological. Plus, from what I've heard from most practitioners, a lot of CBT aimed at CFS is about coping. I mean, plenty of CBT done is...
  8. P

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    I'm pretty sure CBT is regarded as possibly being helpful in a variety of physical conditions, including Cancer related fatigue (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2360364/), Lupus (https://resources.lupus.org/entry/cognitive-behavioral-therapy-benefits-people-with-lupus), asthma...
  9. P

    James Coyne - A sudden reversal of fortune for the biopsychosocial model of illness

    I appreciate him raising awareness of the article, I think it's a good run down of the article, and it has a interesting anecdote at the end.
  10. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I'm absolutely not making her the victim. I'm just making the very mild point that we shouldn't deny that she has experienced at least some degree (even if very small) of harassment. It simply isn't productive, and it makes us look bad. Jennifer Brea, for example, made a very good series of...
  11. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    If you aren't willing to recognize that is a form of harassment, then, I've got to say, you aren't portraying ME/CFS sufferers in a very good light. This article: http://www.businessinsider.com/this-is-what-happens-when-someone-impersonates-you-on-twitter-2015-1?r=US&IR=T certainly seems to view...
  12. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Well, here's a twitter account: https://twitter.com/estherpouts?lang=en pretending to be esther crawley, saying things that portray her in a bad light. That's what I'd call harassment. And that's just on the first page of googling her name. To anyone that even googles her name, it will look like...
  13. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    The ruling related to whether there was enough evidence that the PACE team and participants suffered harassment. Evidence from other ME/CFS researchers being harassed was involved, but the tribunal didn't take any position on whether other ME/CFS researchers had been harassed. And whilst...
  14. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    That ruling didn't relate to harassment of Esther Crawley. The tribunal also didn't say that there hadn't been any harassment, just that it had been exaggerated. We should acknowledge there has been some harassment, but deny that there has been a systemic campaign of harassment. Denying that...
  15. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    It's likely she views the ongoing cause of symptoms as psychosocial. But it's still good she acknowledges it's at least partially biological. If people didn't watch past the first few minutes of the talk, the two main things they would've learnt is that there is evidence ME/CFS is biological...
  16. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Finding it's five times more effective, even just in the short term, is still a fairly bizarre finding.
  17. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I think a bit of the problem with psychiatry is that it's much harder to definitively build up evidence for something being, or not being the case (it's all grey), whereas that isn't the case to such a degree with other areas of medicine. So a group of people can enjoy agreeing with eachother...
  18. P

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Research that Esther Crawley has been involved in has given some bizarre results - like that doing CBT and GET online is fives times more effective than doing it with a real life person, and that pseudo-scientific cultish treatments can help CFS. Now, maybe those results are perfectly valid, but...
  19. P

    New Crawley research? MOrPH-CFS

    I think everyone should at least get the facts right about MEGA. There's no indication they'll be focusing on psych questionnaires, or that they'll use a poor definition of PEM, or that they will purposely exclude severe patients. I'm no expert, so I can't comment on the methodology, maybe it is...
  20. P

    Who is Simon Wessely?

    When scientists can't get acceptance of their views amongst people within their own speciality, they often take their views to the public sphere, where they know other scientists can't as effectively rebut what they are saying, and where their views can appear to have more legitimacy. This is a...
Back
Top Bottom