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Fibromyalgia is more treatable than CFS, so maybe that's what they mean

I really don't see why these tweets need much analysis

Mayo is one of the sources that Google uses for the information, but it would be Google that provides the image.

It doesn't look official

It seems pretty good. It seems to emphasize how much of a serious and disabling condition ME/CFS is throughout, and it even explicitly says it's a biological and not a psychologic condition in the "Pathophysiology and Etiology" section (which is in the presentation and clinical course part).

I think the main problem with models like these (which others have basically already pointed out, and this paper demonstrates) is that they allow everyone to make assumptions, explicit or not so explicit, about the conditions and the sufferers that go much further than what evidence actually...

The article has less than 200 views btw, so it's not like this is a big deal. This thread has almost the same amount of views.

I'm not sure whether much productive has come from these exchanges with Prof Sharpe. I'm concerned that a number of these exchanges have not helped the reputation of pwME (on twitter, at least). Lots of people with ME themed profiles liking each others tweets and passionately responding to...

I feel like besides GET and CBT, attention needs to be paid to the fact that there isn't any good evidence for labeling CFS as a functional disorder, and the many assumptions that go along with putting something under that label. Also the fact that they state that there is evidence of moderate...

You can read the translation of the document according to google translate here: https://translate.google.com/translate?sl=auto&tl=en&js=y&prev=_t&hl=en&ie=UTF-8&u=https%3A%2F%2Fwww.sst.dk%2Fda%2Fnyheder%2F2018%2F%7E%2Fmedia%2F15C564788C0B445682C87695A2AFF6CD.ashx&edit-text=&act=url

It seems completely unnecessary that people are feeling the need to try to interfere with Simon and Mike's lunch plans on twitter. I think a few people need to stop being so overzealous.

Sometimes it's best not to pay too much attention to comments like that. The article is really good though.

Hm this somewhat implies that NIHR isn't being as impartial as they should be.

That amount, even if it was all invested in biomedical research, is still extremely low for the extremely large impact ME has. I think a proportionate amount more in line with other diseases could be something around £20 m per year, not £3.5m every six years. I'm not completely sure, but I think...

Yeah, I think much of the tendency towards mental explanations has partially resulted from the fact that many people don't take the illness or patients seriously, which makes them lean much more towards a mental explanation. When many patients attack mental explanations it's often really an...

It isn't incorrect to to say that Prof Sharpe, or whoever made that statement, are leading in the regard that they've built their careers out of their research and they've been very influential. It's far from optimal that they're described that way, but I don't think it's something worth...

Yeah, but it's our best guess. The best way to find out the prevalence in Canada would be to do a prevalence study like the ones Leonard Jason has done.

There are prevalence studies like those done by Leonard Jason where he, for example, rung up thousands of people to ask them about symptoms, and then interviewed and tested some of them further to arrive at a prevalence rate of CFS. You can then use those prevalence rates to estimate how many...

I don't know what kind of people think that self reporting for a condition with a name like "Chronic Fatigue Syndrome" is any kind of accurate measure. That many Canadians being diagnosed with CFS is a pretty absurd statistic on many levels. I'm concerned that this statistic gives people the...

How else could he increase the funding for ME research?