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not sure - the email I found said "the MRC building" - don't know offhand if this is the MRC London Institute of Medical Sciences or the MRC at One Kemble Street.

Board meetings are held in London (there's one next month), and there was one very early this year in Southampton (at the main hospital). PAG reps have an expenses budget for travel. We are actively encouraged to go, as patient reps, and in fact in January (Southampton) there were FIVE of us...

Hi - yes I will come back t this shortly! I am still on the PAG for CMRC.

Absolutely. I spent time at the conference with her parents who were FANTASTIC, and even though Nina herself had to be wheeled out on a couple of occasions, when she "recovered" she was back in the fray and incredibly inclusive & keen to talk to everyone (even beckoning me over at one point to...

I've PMed you. I can't stress enough, no one on the MEGA PAG has ever encompassed "the bps lot" in any way. We had some resignations last year that were due to reasons personal to each member. Some of the reasons some people left (in 2017) are no longer there (I'll just leave that...

Hi - as a member of the PAG to CMRC since the outset, I must correct you - no one in the group has ever, EVER had any "BPS" bias. We are quite the opposite. Where did you get this impression? The second point, yes the MEGA reps were transferred to the CMRC after the MEGA project folded last...

Hi I assume you mean the patient advisory for CRMC? - I'm not at liberty to reveal names (although there was a link at one point on AfME's CMRC section; I can't seem to find it now....), but we comprise at present: one carer (of a very sick child), one recoveree (me), and six sufferers...

Yes it’s me! I was at both days of the conference.