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:facepalm: UGH, yes, how insensitive. Is it reflective of the rest of the article? (I'm working, and haven't got time to read it at the moment)

Why do I just get "Loading Tweet" when other people can clearly see things, does anyone know?

My caree, having spent quite a long time this evening suffering from the noise (vibration?) of downstairs' bathroom extractor fan (we think it must travel along the joists, or something), swore blind she could still hear it, or something similar, way after it had been switched off. Does anyone...

Not sure where the right place is for this, so apologies to Mods if they need to move it, but is there a thread or something which lists ME researchers, doctors and so on with a(n objective) thumbnail description of what it is they do? I see so many people referred to, and I don't always know...

Another one I've just come across on the B&W website: https://pipinfo.net/ I do wish I'd known about all these before we started this PIP application.

@JohnTheJack (or anybody else): I don't know if you're aware, but if you have a subscription to The Times you can share an article with others, presumably by clicking on a "Share this" button or similar, so that the paywall can be bypassed. It produces a different URL containing the words...

This thread is starting to get me a little concerned as to whether, after all these years, I may have started developing a mild form of ME myself. (It's not contagious, is it?) Or is it just that I'm run down and/or possibly menopausal which might be creating similar symptoms? I'll keep more...

When I started reading your initial post, I thought "This sounds very much like RSI (repetitive strain injury)." I used to suffer really badly with that - it got triggered initially by my sitting with my elbow in a draught in a theatre, of all things! - and it took me a long time to work out...

Ooh, I hadn't heard about this new institute. I'm wondering how much of the campus they have left to build on now - hopefully quite a bit still. I see they are into FMT as well ...

Hmm, yes, I recognise several of these from the days when I was having to empty a commode for my caree. However, from the little that's been said I also recognise some of them as things I've probably suffered from myself, and I don't have ME. So to what extent they are actually ME-related I...

Yes. A while ago, I was looking for a card for someone who was seriously ill. How insensitive would it be to send them a "Get well soon" card if you knew they were terminally ill?

My caree has had several this year.

Exactly. Just when I'd written to mine about my caree's PIP appeal, too. Boris' timing sucks. Mind you, the MEA mentions writing to candidates, not MPs. Another aspect people might like to tackle is the current disability benefits system in relation to longstanding and variable illnesses...

Quite. I approached my caree's MP in relation to her PIP appeal shortly before the general election was called. It is a bit of a quandary.

Have you read the "thou shalt nots" for Vit D pills? I think they probably vary a bit from manufacturer to manufacturer, but they do my caree's head in!

I suspect. I find this too (without having ME), but the response time is far too quick for it to be real. Eating something sweet in my case can ward off a migraine-like headache, feeling sick, and various other things.

If you're overthinking, then so's my caree :( If I don't post here soon, chase me up and I'll ask her what she's worked out.

I've posted about a petition to change the assessors and assessment process for PIP and ESA here: https://www.s4me.info/threads/uk-petition-change-the-dwp-benefits-assessments-system.12009/

Petition to stop contracting out DWP health-related benefits assessments and make the system fairer: https://petition.parliament.uk/petitions/274312/signatures/new UK citizens only.

And gee, look at what one of the most recent posts is: That is why we've been battling for over a year now to get PIP for my caree!