Search results

  1. W

    L-carnitine, tryptophane and d-ribose

    L-carnitine can cause stomach upsets, I believe?
  2. W

    United Kingdom: Department of Work and Pensions (DWP)

    And there I was thinking the header referred to the number of benefits tribunals they'd lost ... :(
  3. W

    Coronavirus: Advice from ME organisations

    I thought I'd seen something (here?) about a Japanese woman who'd caught it a second time? Possibly because the virus had mutated?
  4. W

    The Guardian: DWP accused of offering disabled people 'take it or leave it' benefits

    Although we keep being told that a tribunal will warn you if you stand to lose (some of) your existing award, and ask if you still want to continue.
  5. W

    BIOMARKER FOR MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME (ME/CFS) - Yamamoto et al 27 Feb 2020

    It is, but if they've got as far as filing a patent application, then surely they've done quite a bit of research beforehand?
  6. W

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    There used to be a website, called maybe DoNotLink?, which would allow you to access sites such as the Daily Mail where you might not want to give them the satisfaction of recording your visit. I don't know if it still exists.
  7. W

    Food allergies and links with eczema - sounds vaguely familiar ...

    Don't think this one has been linked to, but I found it interesting. https://www.telegraph.co.uk/news/0/explosion-food-allergies-behind-boom/ (In the Saturday Telegraph Magazine 8th February, in case someone wants to look it up at their local library or whatever) Also, there seem to be some...
  8. W

    Cleaning tips and recommendations for cleaning products

    Re duvet covers, have you discovered the trick: 1. Have cover inside-out. 2. Stick both arms into cover and grab each of the far corners with one hand. 3. While still holding those corners, grab hold of the corresponding corners of your duvet as well. 4. Then "shake" the cover off your arms and...
  9. W

    Anyone have trouble writing by hand?

    I don't know whether they still make them, but somewhere I have a rubbery/plasticky "triangular cylinder" is the best way I can describe it, which fits over normal-thickness pens and pencils to make them easier to grasp. It used to belong to my mum, who had arthritis or something similar in her...
  10. W

    Easy ways to donate time

    What about testing donated jigsaws for charity shops? Or is there too much time pressure? Some places apparently just count the pieces, but that's stupid, because a "500-piece jigsaw" doesn't necessarily have exactly 500 pieces. If you can hold the needles, crocheting things and knitting a...
  11. W

    Cleaning tips and recommendations for cleaning products

    My sister has some cloth things with strips of copper interwoven for cleaning scale - she's quite impressed with them, but maybe they might require too much rubbing effort to be useful here? They came from some mail order company or other.
  12. W

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    My understanding is that even "full-time" GPs have a day off a week for study (and no, I'm not having a go at the definition of "full-time" - GPs work ****** hard).
  13. W

    UK: Disabled mum who killed herself failed by benefits agency

    This was on the front page of yesterday's Guardian: https://www.theguardian.com/society/2020/feb/07/dwp-benefit-related-suicide-numbers-not-true-figure-says-watchdog-nao :(
  14. W

    New MEA Guide: ME/CFS The Ten Key Aspects of Management | 05 February 2020

    I can understand the reference to "gains" in the sense of the supposedly typical pwME being someone who's very driven and overworked (not for nothing was it nicknamed "yuppie flu") being forced to slow down and cut down on work/activity at one end of the spectrum, but NOT e.g. in the case of my...
  15. W

    British tennis player with 'chronic fatigue' wins 2020 Aus Open doubles

    Can't read it because The Times has been playing up for a week or 2 on my computer, but I think one of the other British tennis players has had CFS as well - was it Katie Boulter? (There does seem to be a higher-than-average incidence of glandular fever among tennis players - it's been...
  16. W

    Pressure in legs

    ( Compression stockings are available on prescription in the UK, although weirdly enough, since they come in a pack of two, it's one prescription charge per stocking :( )
  17. W

    Fragrance sensitivity

    Not to mention allergic reactions, as unfortunately happened to someone I know of on her wedding day - despite the invitations specifically asking people to avoid perfume/aftershave/hairspray. She ended up being hospitalised. Those scents have certainly triggered migraines in me before now.
  18. W

    Use of antidepressants for/with ME/CFS?

    And here's me wondering whether my caree might do better reverting to one of the -triptylines than she currently is on the mirtazapine! Horses for courses, I guess ... (Edit: oops, that's in response to some rather old postings - should have checked before I posted)
  19. W

    Hearing things?

    Thanks for the confirmation, everyone. Yes, she does have tinnitus, too, which may be related, and she is having a particularly bad crash at the moment. If anyone's found a way of dealing with it, please do post! It's getting her very stressed at the moment.
Back
Top Bottom