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    Rates of Prolonged Grief Disorder: Considering relationship to the person who died and cause of death, 2023, Thieleman et al

    Prolonged grief disorder Perhaps there's a difference between grief as an expected response that resolves over time and grief that becomes all encompassing and debilitating and which never resolves - the former is 'normal' and the latter is 'disabling'. It's perhaps one of those psychological...
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    Research links chronic constipation to cognitive decline

    Constipation Associated with Cognitive Aging and Decline Key Takeaways: Chronic constipation — one bowel movement every three days or more — could signal worsening cognition. People who were chronically constipated had worse cognition equal to three years of aging, according to the...
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    Iron deficiency and dysregulation

    Prevalence of Iron Deficiency and Iron-Deficiency Anemia in US Females Aged 12-21 Years, 2003-2020 (2023) Angela C. Weyand, MD1; Alexander Chaitoff, MD, MPH2; Gary L. Freed, MD, MPH3; et al Iron deficiency and iron-deficiency anemia are common, underappreciated conditions with significant...
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    United Kingdom: UKCRC (UK Clinical Research Collaboration) Subgroup on ME (part of the UK Government ME/CFS Delivery Plan)

    There's a limit to what small organisations can achieve and in the charity sector most operate at close to their maximum with little in the way of slack or in the way of security for employees, from one financial year to the next. Operating in this way can make it very difficult to change parts...
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    Healthcare use attributable to COVID-19: a propensity-matched national electronic health records cohort study of 249,390 people in Wales 2023 Parker

    This looks significant though I can't attest the soundness of the statistics. One limitation is that the qualifying date ended August 2021 so it is possible that the peaks in Covid in late 2021 and the first half of 2022 may have produced different figures. The following three excerpts seem...
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    Is the research on malingering reliable? Or is the methodology flawed?

    It's the same for any criminality, those who are good at it are not seen to be doing it and so get away with it while those aren't good at it are obvious and so get caught. How much fraud there is any one system is hard to tell but there are more than just monetary gains to be had from...
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    Is the research on malingering reliable? Or is the methodology flawed?

    Fraud, if successful clearly offers the potential for a significant gain on investment - if someone receives income to cover the limitations of a disability they don't have, then they are free to make use of their lack of incapacity in ways that a disabled person isn't. Concern about fraud...
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    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Just adding a note here regarding the future of the APPG and by extension Forward ME. The APPG as a matter of course will be dissolved at the next General Election which must happen within the next 18 months, creation of a new APPG will depend on the make up of the new Parliament. With the...
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    Is the research on malingering reliable? Or is the methodology flawed?

    I'm not sure about extremely rare, all parts (at least in the UK) of the Welfare system are targetted for fraud, however what does seem to be rare is fraud by people who actually are disabled or chronically ill, for them the problem is underpayment or no qualification for benefit. Malingering...
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    Genetic Risk Factors for Severe and Fatigue Dominant Long COVID and Commonalities with ME/CFS Identified by Combinatorial Analysis, 2023, Taylor et al

    Eligible participants (n = 1,996) Is this a meaningful cohort for this type of study ?
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    Is the research on malingering reliable? Or is the methodology flawed?

    I don't know about methodology but there should be no conflation of the term 'malingering' with imputed medical causality - physical or psychological. Malingering has very specific meaning and although that could encompass exaggeration of a medical condition evidence for it should not in anyway...
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    A phenomenological study on the lived experience of men with Chronic Fatigue Syndrome, 2023, Snell et al.

    What is phenomenological research? The philosophy of phenomenology resides within the naturalistic paradigm; phenomenological research asks: ‘What is this experience like?’, ‘What does this experience mean?’, and ‘How does the lived world present itself to the participant or to me as the...
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    Amygdala and Insula Retraining (AIR) Significantly Reduces Fatigue and Increases Energy in People with Long COVID 2023,Toussaint et al

    The 2nd author: https://www.alexbratty.com/ How We Help We provide full-service research-based consulting to help leaders and organizations identify opportunities and operationalize strategy that translates to elevated performance. Who We Serve We work with clients who need to solve...
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    Camptocormia - another disease blamed on conversion disorder

    I wasn't clear, I didn't mean I was supporting what we now understand as camptocormia as being the condition that affected WW1 soldiers, just that there are so many confounders that it's difficult to make any certain finding of what might have been behind any given postural pathology. It's true...
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    Camptocormia - another disease blamed on conversion disorder

    There are just too many variables affecting WW1 populations. One element that can't be discounted in any postural condition in 1914-18 is dietary insufficiency so that even in young adults osteomalacia & osteoporosis become relevant as does osteoarthritis where spinal damage sets in from...
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    Preprint Determinants of the Onset and Prognosis of the Post-COVID-19 Condition: A 2-Year Prospective Cohort Study, 2023, Mateu et al.

    The two studies are very different in size 135,000 versus 547 and at first sight I'd say the demographics of this smaller study are somewhat different to the larger, although I really don't know enough about Catalonia's socio economic structure to match the education data of the smaller study to...
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I think where public services are concerned there's strong editorial 'support for the producers' versus 'less support for the consumers' so doctors/nurses before patients, teachers/lecturers before students etc. Not surprising really as The Guardian is the major UK newspaper for public sector...
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    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    How to send a letter to the Guardian "Have you been affected by an issue that you have read about in the Guardian? Do you disagree with one of our writers’ opinions? Or just love one of our articles or podcasts? We at the Guardian letters desk would love to hear from you. Send your letter to...
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    News from Aotearoa/New Zealand and the Pacific Islands

    The EU and New Zealand sign an agreement for the participation of New Zealand in European programmes like Horizon Europe The European Union and New Zealand have today signed an agreement for the participation of New Zealand in EU Programmes. The agreement creates a long-lasting legal framework...
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    Review Overall comorbidities in functional neurological disorder: A narrative review 2023 Carle-Toulemonde et al

    So not "high burden" of illness on patients but "high burden of FND patients" on what ? society ? medical services ? The authors are all apparently French so maybe something is lost in translation into English but this language looks grotesquely discriminatory.
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