I wouldn't take the statement on the front page of the website as requiring a defintional change in the Charity's objectives. As long as the activity undertaken is subservient to the achievement of the stated objectives then the Charity is acting within its legal remit. The directors have...
How prior and p-value heuristics are used when interpreting data
Ethan Hermer, Ashley A Irwin, Dominique G Roche, Roslyn Dakin
Abstract
Scientific conclusions are based on the ways that researchers interpret data, a process that is shaped by psychological and cultural factors. When...
My 'reading of the tea leaves':
There's three main reasons why a UK Government uses a 'consultation'. 1/ (very rare) there's a genuine wish to understand what the target audience thinks; 2/ (common) the consultation is a way of softening the...
FWIW I'm confindent the lists I drew up were complete to that point. Pretty damning that none of that spending produced anything useful for a NICE review, something I'd not previously given thought to.
Bristol Children's Hospital (BCH) is part of the same Medical School as Esther Crawley - senior author of the FND poster is also a Bristol Medical School lecturer and, while proximatey doesn't imply familiarity, Crawley's office is just down the hill from BCH. I think it's a safe bet on how CFS...
A study shows… David Nunan
"There is a growing epidemic of reference-based medicine and confirmation bias. Here’s how to spot it.
In the age of information overload, finding a published study to support a viewpoint has become effortless. The phrase “A study shows…” has become ubiquitous, but...
Capacity of the clinics only allows hundreds per annum - well below any Incident level required to sustain a 125k plus patient population. I do agree about GPs though, but again with each GP only having an average of <10 ME/CFS patients on their list we probably shouldn't look to GPs as being...
1. Not to any great degree, there is: The epidemiology of chronic fatigue in San Francisco from which: "CFS- and ICF-like illnesses were most prevalent among women and persons with annual household incomes below $40,000, and least prevalent among Asians. The prevalence of CFS-like illness was...
That obviously hasn't helped - in comparison many specialisms actively encourage patients to become involved in patient orgs and carry literature from orgs. However the annual numbers seen by the CFS clinics is small relative to the incident levels that would be needed to meet a patient...
Bequests/legacies are a key target for building long term stability in a charity - as distinct from year to year survival from one off donations or subscriptions. Whether there are particular disadvantages for ME/CFS to attract bequests I'm not sure, again this come down to what the comparators...
To make sense of that though we need to have an understanding of any chosen comparators - when it comes to fund raising for medical research, size matters: The 5 Most Influential Medical Research Charities in the UK setting aside Welcome, the other four are 'disease named' and wield huge public...
There are specified exemptions in the Act: Part II Exempt information
My guess is that in this case the Charity Commission (CC) is relying on Section 36 for an explanation of which:
"The section 36 exemption applies only to information that falls outside the scope of section 35. It applies...
Exerkines in health, resilience and disease (open)
Abstract
"The health benefits of exercise are well-recognized and are observed across multiple organ systems. These beneficial effects enhance overall resilience, healthspan and longevity. The molecular mechanisms that underlie the beneficial...
Rebrand is just crass, - "Condition X " anybody ? And 'worldwide' where the world is that of the Baseball World Series - somehow never bigger than North America ?
Looks like the key jargon is: “Healthcare 1.0” to “Healthcare 4.0” for more of which Health Care 4.0: A vision for smart and connected health care
1. Introduction
Worldwide, we have seen growing interest in engineering approaches to health care delivery in a context of rapid development in...
Caveat - In Mice !
"We find that CCK&Dlx5/6 driven expression overlaps heavily with PV expression in GABAergic interneurons in mouse hippocampus and neocortex. We extend this finding to monkey hippocampus and find PV/CCK co-expression. For most of our subsequent work, we focus on the mouse...
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