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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    It's the old plebicite trick - offer two options one of which is clearly absurd/unworkable/cruel and the other is what the powers that be actually want. Hey presto everyone votes for what the Government wanted all along. I still don't see this getting through Parliament until after the next...
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    News from Cochrane

    I'm filling in gaps here which may not be valid but - the 'Norwegian Sattelite of the Cochrane Effective Practice and Organisation of Care Review Group' has closed because of the withdrawal of NIHR funding, see: https://epoc.cochrane.org/node/176 and out of date page...
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    Feeling insecure about romantic relationships

    The whole 'romance' paradigm is built on insecurity - it involves endless possibilities of failure, embarassment and rejection from the exposure of deeply personal sensitivities to the judgement of others. Romance is biological and social fitness testing for potential breeding partners and/or...
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    Ocular and visual migraine, retinal migraine

    I can't distinguish between PEM/non PEM occurence. I get the full gammut of vision impacts as part of paralyzing migraines which started only after ME/CFS had kicked in some years previously. In my case the migraine cause is usually identifiable some can be dietry (dairy) but the usual precursor...
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    News from Cochrane

    Norway funding - Cochrane statement 2020 https://www.cochrane.org/about-us/our-funders-and-partners puts the Norwegian Agency for Development Cooperation (Norad)) in the £100k>£500k per annum band with no other Norwegian source mentioned. Perhaps Norad had a time limited funding for Cochrane...
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    Covid-19 vaccines and vaccinations

    substack:Christina Pagel Latest Covid situation in the UK: 6 Oct 2023 In this substack, I’ll cover the latest on vaccination, cases, hospital admissions, deaths, variants and workforce disruption… so quite a bit to say this week! The autumn 2023 campaign is underway - so far 3 million...
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    What Is a Neuroplastician?

    Psychology Today What Is a Neuroplastician? Key points Neuroplasticity enhances learning and memory via new neural connections. Brain recovery is possible in later stages of life, aiding injuries or diseases. Neuroplasticians rewire brains, enabling better learning and habits...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Jeremy Hunt - currently Chancelor (Finance Minister) and previously the longest serving (2012 - 2018) Secretary of State for Health since the creation of the NHS. The current structure of the NHS and its capacity to respond to illness in working age people is in large part down changes brought...
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    UK Government ME/CFS Delivery Plan consultation

    Thought I'd get this one in: "It is not simply that biomedical research has been underfunded, the research base has been biased by unwarranted funding of psychologically determined research. The NIHR has been especially remiss providing over £4 million since 2008 to studies that have provided...
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    Replication games: how to make reproducibility research more systematic, 2023, Brodeur et al

    Nature: comment article Replication games: how to make reproducibility research more systematic Abel Brodeur, Anna Dreber, Fernando Hoces de la Guardia & Edward Miguel In some areas of social science, around half of studies can’t be replicated. A new test-fast, fail-fast initiative aims to...
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    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    Blog: Evidence-based medicine”: does it lead to people turning off their brains? quotes David Gorski (Science Based Medicine) article: The Cochrane mask fiasco: Does EBM predispose to COVID contrarianism?
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    How I rewired my brain in six weeks

    BBC How I rewired my brain in six weeks There is growing evidence that simple, everyday changes to our lives can alter our brains and change how they work. Melissa Hogenboom put herself into a scanner to find out. "It's surprisingly hard to think of nothing at all", is one of my first...
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    OpenSAFELY Wins CogX Award for Open Science Innovation, 2023, Nick DeVito

    Sorry no. I can't even recall which Twitter follow I picked up the link from. However it seems Ben Goldacre is part of the team behind it:
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    Effect of Central Sensitization in Patients with Familial Mediterranean Fever, Axial Spondyloarthritis, and Both Diseases, 2023, Nur Kaya et al

    THE CENTRAL SENSITIZATION INVENTORY The central sensitization inventory: A user’s manual - full paper at SciHub: https://sci-hub.se/10.1111/jabr.12123
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    ME Association: iterations of objectives between 2021 and 2023

    My concerns are complex - but that's part of a wider problem with many issues around ME/CFS where simplifications consistently disguise many of the logical problems that affect understanding of what ME/CFS may or may not be. The best simpliification I can give re: the MEA position is that I'd be...
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    Review Treatable traits for long COVID, 2023, Lewthwaite et al

    Paper from the TT team: Treatable traits: a new paradigm for 21st century management of chronic airway diseases: Treatable Traits Down Under International Workshop report I think this interesting. Whether or not TT is applicable to areas other than respiratory diseases requires testing, on that...
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    OpenSAFELY Wins CogX Award for Open Science Innovation, 2023, Nick DeVito

    OpenSAFELY Wins CogX Award for Open Science Innovation Nick DeVito We’re delighted to announce that the OpenSAFELY Collaborative has won a prestigious CogX Award for the Best Innovation in Open Source Technology! This award celebrates “revolutionary new releases of an existing suite of open...
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    The lived experience of depression, 2023, Fusar-Poli et al

    World Psychiatry Journal The lived experience of depression: a bottom-up review co-written by experts by experience and academics Paolo Fusar-Poli, Andrés Estradé, Giovanni Stanghellini, Cecilia Maria Esposito, René Rosfort, Milena Mancini, Peter Norman, Julieann Cullen, Miracle Adesina, Gema...
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    ME Association: iterations of objectives between 2021 and 2023

    Unless the articles of association specify limits, the Trustees of a Charity (the Board) are free to interpret the meaning of the words defining the Charity's Objects, in reasonably broad terms. In the case of the MEA, if in the view of its Board adding Long Covid to the 'offer' the Charity...
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