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    United Kingdom: National Health Service (NHS) news

    New Secretary of State for Health and Social Care Ministerial appointments: November 2023 > Victoria Atkins This is 7th person to hold the role in five years, this high level of 'churn' has become a feature of UK Government across all departments in the last 8 years: Is this the age of churn...
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    I was rather hoping for some refs to epidemiology of post COVID matched to ME/CFS or vice versa - I can't find anything using >2023 data on Google Scholar. There's all sorts stuff (often making wild claims) using data from the early stages of the pandemic but nothing that I can see that gives...
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    Do we actually have any meaningful epidemiology that establishes the prevalence of ME in Long COVID ? Indeed how is it that ME/CFS is "prevalent in Long COVID" rather than "Long COVID being prevalent in ME/CFS" ? It all looks horribly circular and open to whatever fanciful or self serving...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Link to the bios doesn't as yet contain Katherine Cheston's details - here's her Durham staff bio: https://www.durham.ac.uk/staff/katharine-a-cheston/
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    Dentistry; dental treatment

    I'm not inclined to put much effort in to reading stuff from authors I know to produce junk - I have though had a look. Firstly with one exception (Bjørklund - who is a journalist) all the authors have a close relationship with the Geiers (father and son) so there is no independent scientific...
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    Is NICE losing its standing as a trusted source of guidance? 2023, Jonathan A Michaels, honorary professor of clinical decision science

    Is NICE losing its standing as a trusted source of guidance? - Obvious case where Betteridge's law of headlines applies: "Any headline that ends in a question mark can be answered by the word NO."
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    Dentistry; dental treatment

    The Geiers were well known antivax quacks - I'm afraid nothing with their names attached should be considered scientific: Mark Geier
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    Dentistry; dental treatment

    No not significant. The WHO's 'no safe level' isn't a practical guide it's a 'worst case' statement where there's no possible way to estimate a minimum. Amalgam of course isn't pure mercury, but a very stable mixture of materials, so the two are not equivalent. UK dentists will follow the BDA...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Company = LIVING PROOF ENTERPRISES LTD Company number SC735862 https://find-and-update.company-information.service.gov.uk/company/SC735862 Sole Director: GEORGE, Penny Anne .. Role Active , Director .. Appointed on 17 June 2022, Nationality Scottish, Country of residence Scotland, Occupation...
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    Long Covid in the media and social media 2023

    The UK Covid Inquiry is now headline news: https://www.bbc.co.uk/news/live/health-67292085 'Macho' culture harmed Covid response, inquiry told Boris Johnson asked scientists if hair dryer could kill Covid, says ex-aide Covid inquiry: Read the private WhatsApp messages from inside Downing...
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    Moments of confusion during certain movements

    Positional mememory ? I'm not sure I'd seperate the short term positional disassasciations I experience from the longer term memory lapses of the "oh crap where am I" type. Probably multiple interplays between proprioception and difrerent layers of memory caused by who knows what ???
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    United Kingdom: BACME 2023 National Services Survey Report

    Can't offer any sensible comments on a brief read - but this is very important data. Gives a pretty good picture of what is actually happening/not happening.
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Just to repeat a point I've made before because it's key to what the Commission is about. The Charity Commission has a dual role - it is a regulator of Charities, but it is also a promoter of charitable activity (as defined in Law)' as a social good and in this role provides support to...
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    From the Charity Commission perspective a Charity doesn't have to be 'good' at what it does, it simply has to fulfil legally defined criteria, and the Commission is the body that interprets the Law and sets the criteria. Getting the Commission to act when it doesn't see a need to, is near...
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    Exploring the complexities of illness identity and symptom management in seeking a diagnostic label of (POTS) 2023 Iris Knoop, Moss-Morris et al

    "I'm all lost in the supermarket I can no longer shop happily I came in here for the special offer Guaranteed personality" https://genius.com/The-clash-lost-in-the-supermarket-lyrics
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    This is probably the wrong thread but it's relevant to the impetus the Government is claiming for the changes - that is the "unsustainable" increase in people economically inactive (sic) because of ill health: Financial Times: 17/10/2023 UK delays publication of workforce data, raising...
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    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    It is an utterly cynical manipulative exercise, designed to ensure the Gov. gets the answer it wants. I can't see any obvious way subvert the pro forma to ensure the Gov. has to acknowledge a different perspective.
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    If you had to guess ME/CFS cause, what'd you say?

    A question I've been concerned with for close on 40 years. Only honest answer = "I don't know". Specualtion is always fun, and having a favoured answer can give comfort by adding a false certainty to a confusing world, but getting overly attached to an explanation that has no fundamental...
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    News from Cochrane

    Literal translation for both into English is "high school" which has a somewhat different meaning in the UK to the Scandanavian usage where it seems specific to tertiary level education, in the UK the term is specific for schools for students aged 11 - 16/18 only, however "high school" is not a...
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