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    Blog: Hilda Bastian: "Bad and Good(-ish) News on the Abstract Spin Cycle"

    Difficult to make something contractual on "unpaid" peer reviewers. Of course journals could start paying for peer reviews but then that might upset the business structure of academic journal publishing which is based on extracting as much value for the publishers as Government funding and the...
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    ‘It’s time to devise a more efficient solution’ Science editor in chief wants to change the retraction process

    ‘It’s time to devise a more efficient solution’: Science editor in chief wants to change the retraction process "On the heels of a high-profile retraction that followed deep investigations by the Science news team, Holden Thorp, the editor in chief of the journal, says it’s time to improve the...
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    Physical therapists have a lot to learn about post-viral fatigue in the wake of a “tsunami” of long COVID patients

    It's difficult to get people to think in other than linear terms, even more so for those who measure things - therapists, researchers etc for who there is a tyranny of 2d charts with everything moving, if only on the time vector - in one direction. I'd hesitate to invoke 'chaos' but...
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    Salivary Biomarker Profiles and Chronic Fatigue among Nurses Working Rotation Shifts: An Exploratory Pilot Study, 2022, Yamaguchi et al

    Cumulative Fatigue Symptom Index = Kosugo, R.; Fujii, H. An index for rating Cumulative Fatigue Symptoms (CFSI) in different occupations. J. Sci. Labour 1987, 63, 229–246. (In Japanese) [Google Scholar] The Google Scholar link is to a citation only, and the article doesn't appear be available...
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    Somatic symptom disorder in patients with post-COVID-19 neurological symptoms: a preliminary report from the somatic study, 2022, Kachaner et al

    Sci-Hub Screening for prolonged fatigue syndromes: validation of the SOFA scale and Prevalence of chronic fatigue syndrome in an Australian population years 2000 and 1990 respectively, nice to see the psychs using up to date research.
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    OSTP Issues Guidance to Make Federally Funded Research Freely Available Without Delay

    OSTP Issues Guidance to Make Federally Funded Research Freely Available Without Delay https://www.whitehouse.gov/ostp/news-updates/2022/08/25/ostp-issues-guidance-to-make-federally-funded-research-freely-available-without-delay/ Today, the White House Office of Science and Technology Policy...
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    Autoimmune Autonomic Dysfunction Syndromes: CRPS, FM, CFS, Silicone Breast Implant–Related Symptoms & Post-COVID Syndrome, 2022, Mahroum

    Study pretty much relies on this for an ME/CFS connection: https://www.s4me.info/threads/myalgic-encephalomyelitis-chronic-fatigue-syndrome-evidence-for-an-autoimmune-disease.3560/ Basically this article is "lets throw in a few separate medical conditions that look a bit similar and see what...
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    Limitation of Consent

    The NHS is being squeezed in a vice "During June of this year, 102,000 people waited 12 or more hours in A&E, almost four times the pre-pandemic average for the same month. A further 441,000 waited between four and 12 hours, double the typical number. By my calculations, June’s waiting times...
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    Sex-dependent characteristics of Neuro-Long-COVID: Data from a dedicated neurology ambulatory service, 2022, Michelutti et al

    Differentials on Neurological and Endocrine comorbidities account for virtually the entire cohort gender differential. Neuro comorbid 65f - 18m = 47fdif, Endocrine comorbid 32f - 3m = 29fdif Total Nc + Ec dif 47f + 29f = 76fdif Total study cohort 213 - 76fdif =...
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    Article Guardian: Colds, coughs, stomach bugs: why are so many of us getting ‘winter’ diseases this summer?

    Ugh - the Guardian uses the phrase "busy mum" - pretty much says it all about this nonsense article. For anyone wanting a longish read on viral 'seasonality' Seasonality of viral infections: mechanisms and unknowns "Abstract Seasonality is a long-recognized attribute of many viral infections...
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    Limitation of Consent

    Yup. I've only ever been in an ambulance/A&E once in my life - over 20 years ago, even then 10+ years of having ME - I certainly wasn't concerned about whether any staff were ME aware or whatever. I was however (reasonably so) concerned that I may have lost permanent function in a hand. It was...
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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Yes I assume that is how they use the current 'guidance' - additionally I'd make it available online as a media contact page.
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    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Phil Hammond retired from the NHS at the beginning of 2022: In Conversation Live with Dr Phil Hammond https://www.rsm.ac.uk/events/philanthropy/2021-22/phq13/ "Dr Hammond qualified as a Doctor in 1987 and worked in the NHS for 37 years. As a doctor, he worked part time in general practice for...
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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    There's an ambiguity in what AfME is asking for - it's not clear whether they mean their "handbook of best practices" will replace or, will be used alongside the existing guideline. Anyone making a response might want to address that along with the question of how the "handbook" can be best used...
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    Journalist Primer: How to Report on ME/CFS (from MEAction)

    Media markets and media cultures vary hugely from country to country. In the US, local TV and Radio has a far greater presence than in the UK, and while there has never been a large 'national' Newspaper market such as that in the UK, there has been a very strong body of quality journalism...
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    Limitation of Consent

    I don't understand - who is going to "suck it up" ? Patients wanting paramedic supported transport to an emergency department aren't in a position to demand which clinicians will treat them in A&E - either the patient is in need of emergency intervention in hospital or they are not. Having a...
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    Scientists face hard choices as UK prepares to abandon EU projects for years to come

    €42mn on a contribution of €6.7bn so yes only around 0.62% of the total UK Horizon spend over seven years: https://www.nature.com/articles/d41586-020-03598-2 That of course is across all sciences, not just Health. An aspect of Horizon that's often understated is the involvement of 124 non EU...
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    Limitation of Consent

    Record-breaking ambulance waiting times could get ‘significantly worse’ in winter, chiefs warn "The June figures also showed that almost 6,485 people waited in ambulances outside hospitals in England for more than four hours, while 3,925 waited over five hours. A further 494 waited longer than...
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    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    The key paragraph from Clark: "CFS is a complex condition affecting physiological systems. It is important that novel analytical techniques are used to understand the abnormalities that lead to CFS. The underlying network structure of the autonomic system is significantly different to that of...
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    Long Covid in the media and social media 2022

    Private Eye 28th July
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