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How could it be known ? There simply isn't the epidemiology at scale to identify with any certainty occupation trends in ME/CFS. There will be a huge confound in any data because healthcare is female employment heavy and such epedimology that does exists shows a strong gender imbalance toward...

Rapid Response: Re: Ultra-processed food exposure and adverse health outcomes: umbrella review of epidemiological meta-analyses Dear Editor A pervasive issue in health research is overlooking uncertainty in interpreting findings. Lane et al employ the GRADE methodology, which is designed to...

Certainly that, but there is a moral imperitive for the same to apply to the use of Public funds supporting research and to Public Institutions hosting research.

There's a question as to why researchers pursuing psychological appraoches have been so poor at engaging with patients and patient advocacy - it is not simply that the investment in psychological approches to ME/CFS have yielded no benefit despite $millions spent - there is also the question of...

As I said above I think there's a cultural issue here and I find it difficult to understand your perspective, to me your questions are somewhat of a non sequiter. I certainly wouldn't start writing a Charter with the confrontational outlook you propose, and I don't share what I see as an overly...

We have very different perspectives. Part of that perhaps is cultural, and that does have implications for a 'Universal Charter'. However from my UK cultural view I have no difficulty with anything being political - indeed I see illness, disability, medicine and health research to be some of the...

This is still online though the blogger is no longer active: https://cfsmirror.blogspot.com/2012/

I'm somewhat agnostic on the Charter idea, however I don't think the XMRV case is a substantial example of where a Charter would fail - though of course I take the points about the specifics of that disaster. The XMRV story didn't come out of nowhere. Wise after the event (some might claim to...

Also reviewed in The Guardian: https://www.theguardian.com/books/2024/jan/11/how-life-works-by-philip-ball-review-the-magic-of-biology

TLS Gene-eyed The ‘secret of life’ isn’t reducible to DNA Review by Johnjoe McFadden HOW LIFE WORKS A user’s guide to the new biology PHILIP BALL 560pp. Picador. £22. PHILIP BALL’S NEW BOOK opens on June 26, 2000, the day President Bill Clinton announced the completion of the first-draft...

Re:effort preference; I'm not able to make a cogent argument for this but for anyone looking to come up with rebuttal points, I wonder if evoked potentials offer a useful contrast. The common set up for EP testing is scalp electrode measure of brain activity while the testee makes a mechanical...

" government knew Post Office ditched Horizon IT investigation" "By Andy Verity BBC economics correspondent David Cameron's government knew the Post Office had ditched a secret investigation that might have helped wrongly accused postmasters prove their innocence, the BBC can reveal. The 2016...

The hardware is the software Abstract: Human brains and bodies are not hardware running software: the hardware is the software. We reason that because the physics of artificial intelligence hardware and of human biological “hardware” is distinct, neuromorphic engineers need to...

Quote: "Clinically, the functional analysis and the FACCM are considered most useful when assessing complex clinical cases such as patients with multiple problem areas and multiple interacting causal variables and when standardized treatment is ineffective (Haynes et al., 2011, Lappalainen and...

Prediction is a reductive of Popper, like EBM this reduction removes any significance of prior plausibility and so long as a proposition produces a predictable/repeatable result it is deemed, metaphysics or not - to be true. Simplistic prediction is fine for basic chemistry and physics but...

Gave up on Google long ago - shifted to the non tracking Duck Duck Go - stupid name but pretty much matches Google for functionality. DDG and Bing give me NHS & MEA as 1 and 2 and Wikipedia on the right bar.

A bit arcane maybe but interestingly uses the NHS as an example - article by David Allan Green identifies a UK structural problem that may or may not exist in other jurisdictions, and therefore suggest actions that could be successful elsewhere but which fail in the UK: Why it’s time to drop the...

The test for a UK Public Inquiry is high and requires a combination of public outrage and the interest of the Political class. I wouldn't hold out much hope of ME/CFS being a subject of a high level Inquiry unless profound and deliberate (rather than good faith belief) wrongdoing/criminality can...

Disability News Service DWP set to waste thousands fighting release of two secret reports The Department for Work and Pensions (DWP) is set to waste thousands of pounds of public money fighting two rulings by the information commissioner that it must release secret reports affecting millions...

A further bit of the history - very first News exposure was on the very small audience S4C Welsh language channel, 10 years before the key legal decisions were arrived at: Twitter sorry -