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1. Applies in England only, not UK wide 2. This is the briefing: https://www.england.nhs.uk/2023/03/opioid-prescriptions-cut-by-almost-half-a-million-in-four-years-as-nhs-continues-crackdown/ 3. This is the document...

Couple of articles adding perspective and nuance ? i news Stop blindly believing or dismissing the Covid lab-leak theory – focus on the evidence Stuart Ritchie "How do you make your mind up on controversial scientific questions? The debate around the origins of the Covid virus offers a nice...

One of the authors of this that I linked to above: Gastrointestinal disorders in joint hypermobility syndrome/Ehlers-Danlos syndrome hypermobility type: A review for the gastroenterologist Google Scholar gives a number of other papers on ED by Aziz, also on IBS - nothing on ME/CFS.

I think there are two separate concepts that need to be communicated - a) intolerance related to food sensitivities, something which may be addressed by dietary adjustment (FODMAP etc), but which in some individuals extends to an unmanageable range of foods leading to severe dietary...

For those worried about using sweeteners that contain erythriol: From the NS article: "As what is termed “observational research”, the studies didn’t prove that erythritol was causing the higher risk – something else could explain the correlation. So the team then explored the effects of...

I don't know what White's aim was but the goal was an open one, and gives an object lesson in getting one's arguments straight before putting them in front of people who may not agree with those arguments or who have other agendas, which should probably be the main take away from that episode as...

iNews 25 years after the MMR vaccine autism fraud, we’re still dealing with the consequences Stewart Richie The MMR scare was based on a fraudulent study. What have we learned since it was published? We’ve reached a very ignominious anniversary. Today, the infamous study that claimed to link...

Nature: The artificial sweetener erythritol and cardiovascular event risk Abstract "Artificial sweeteners are widely used sugar substitutes, but little is known about their long-term effects on cardiometabolic disease risks. Here we examined the commonly used sugar substitute erythritol and...

I can't see what is wrong with that apart from the assertions about "CFS/ME" and weight loss, but severe weight loss in anyone should be basis for referral to a full gastro team for assessment, not just to a dietician.

I agree. I'd go back to my earlier suggestion about having a two pronged approach - the immediate issue revolves around those small number of cases where the patient is on the verge of being hospitalised or is actually in hospital and where enteral feeding is deemed necessary or very likely to...

That's far too narrow a test to be useful in assessing research in ME/CFS - we still don't know if we are dealing with a single disease process that is expressed with huge variation across a heterogenous patient population, or a disease process that expresses in multiple subtypes within...

For patients with a single disease diagnosis of ME/CFS, the 2021 NICE guideline should provide some protection from psychologisation, it is those who have a collection of comorbids and alternatives that are especially vulnerable (the point I was trying to get at previously). Jejunal feeding...

Is prone versus supine a relevant question ? If the issue is Head of Bed elevation, then the recommendations for elevations seem comparable for both. Boullata et al are applying a relatavism so they are not saying there is no risk, only that risk is comparable when lying on front or back, they...

But isn't labelling one of the problems ? While 'we' may be clear about the spectrum of illness that we understand is included in ME/CFS, across the whole of medical academia there is a vast array of labelling preferences for alternate and comorbid diagnoses dependent on individual patient...

In the recently posted thread it was stated the patient has Ehlers-Danlos Syndrome AND ME/CFS. EDS has known correlation with intestinal problems and might offer useful comparisons, although what seems like a frequent confounding of EDS with ME/CFS may make EDS as a comparator less helpful...

I certainly wasn't suggesting rare = ignorable, just that a degree of circumspection is required when recruiting these rare cases into the service of general ME/CFS advocacy or a research setting that is concerned with elucidating the generality of ME/CFS.

It's somewhat invidious to have to get to grips with, but the reality of internet discussion of ME/CFS over the last 25 years has unsurprisingly been in large part emotionally driven, and an unpleasant aspect of that is that the identified deaths of people with an ME/CFS diagnosis have been...

The Economist There is a worrying amount of fraud in medical research IN 2011 BEN MOL, a professor of obstetrics and gynaecology at Monash University, in Melbourne, came across a retraction notice for a study on uterine fibroids and infertility published by a researcher in Egypt. The journal...

ASA I think would be the first call https://www.asa.org.uk/make-a-complaint.html https://www.asa.org.uk/type/non_broadcast/code_section/03.html https://www.asa.org.uk/make-a-complaint.html Looks like the basis for a complaint would be easily met - though personally I don't currently have...

Average age was 60, cohort was 63% male, 70% had serious comorbidities and 28% had been treated for COVID in ICU.