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    Article BBC: Endometriosis: How new treatment 'changed my life' 2021

    Doesn't look like it would fit the Plan priorities: https://www.gov.scot/publications/womens-health-plan/pages/8/ ensure women who need it have access to specialist menopause services for advice and support on the diagnosis and management of menopause; improve access for women to appropriate...
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    Long-COVID syndrome: physical–mental interplay in the spotlight 2023 Thurner and Stengl

    The first order BPS references are to Engel - there's nothing from the UK interpretation or its supporters, which I think is significant. The paper notes that Post acute COVID sequelae (PASC) affect a large and diverse population and that population has diverse medical and social needs which...
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    Who is Simon Wessely?

    I don't think anyone said it was symbolic - but it is pretty basic formal admin https://www.england.nhs.uk/publication/nhs-england-public-board-meeting-agenda-and-papers-2-february-2023/ I find Black's language unhelpfully hyperbolic. Wessely is the guy who, when everyone else hears there's a...
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    Central sensitisation theory - discussion thread

    That's not science. You need to start with a falsifiable hypothesis - only then can you start to construct experiments.
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    News from Scandinavia

    Interview with the writer/director of Sick of Myself. https://www.filminquiry.com/kristoffer-borgli-interview/ Not especially revealing other than reference to this painting(s): Syk Pike "The sick girl (syk pike) in the painting is Munch's sister who is dying of tuberculosis"
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    Thesis: A neuroinflammatory paradigm can explain Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome and Post-COVID-19 Fatigue Syndrome

    The full thesis is available as a pdf - open the Show full item record on the https://ourarchive.otago.ac.nz/handle/10523/15089 page - lower right. Direct pdf: https://ourarchive.otago.ac.nz/bitstream/handle/10523/15089/MackayAngus2021PhD.pdf?sequence=1&isAllowed=y
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    Thesis: A neuroinflammatory paradigm can explain Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome and Post-COVID-19 Fatigue Syndrome

    Also: A Paradigm for Post-Covid-19 Fatigue Syndrome Analogous to ME/CFS https://www.s4me.info/threads/a-paradigm-for-post-covid-19-fatigue-syndrome-analogous-to-me-cfs-2021-mackay.21994/
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    Renaming the disease: who calls the shots?

    Scope (formerly the National Spastics Society) is an interesting case - the name change was closely followed by the constitutional change to a membership model (claims to be the first major disability charity to do this) and part of a process of modernisation, astute marketing and disability...
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    Renaming the disease: who calls the shots?

    A full answer would require a treatise. I'll attempt something brief: There's a practical difference between 'naming' -and 'categorisation' although in medicine the two are constituents of Nosology . There is no absolute world court on the naming of diseases, much of it is convention and...
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    Muscle endoplasmic reticulum stress in exercise, Marafon et al 2022

    Everyone has a mix of fast twitch and slow twitch muscle fibres - for those who are intent on athletic performance their particular mix will define which type of activity they may (depending on many other variables) excel at. The notion that athletes are especially prone to ME/CFS has been...
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    Muscle endoplasmic reticulum stress in exercise, Marafon et al 2022

    Over training is one of those phrases that everyone thinks they know what it should mean, but hardly anyone does, e.g Overtraining Syndrome: A Practical Guide* "Conclusions: OTS remains a clinical diagnosis with arbitrary definitions per the European College of Sports Science’s position...
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    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    That's why I used 'supporters' - they have "Supporting Membership" which gets around the fact AfME is, unlike MEA, not a membership organisation. As of last year Supporting Members can vote for Trustees...
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    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    In this case I think cost = general resource. I don't know who is attending from the MEA and AfME but I wouldn't assume they are comfortable with the tech or the process of introducing it in the context of Parliament (specific regs ?) . And the MEA and AfME are answerable to their...
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    'Digital antidepressants' to be rolled out on the NHS as health bosses give eight apps and web-based therapy courses the green light

    The actual report - not the Daily Fail's gibberish: Eight digitally enabled therapies to treat depression and anxiety in adults conditionally recommended by NICE "Eight digital enabled therapies to treat depression and anxiety disorders in adults have been conditionally recommended by NICE in...
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    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Cost ? There's no Parliamentary funding only what outside interests (in this case MEA, AfME) provide. Not all APPGs are equal - some have well healed backers: Westminster Accounts: 'The next big scandal' - Informal groups of MPs given £20m from external organisations since 2019 "All-party...
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    Psychiatric symptomatology in skin-restricted lupus patients without axis I psychiatric disorders: A post-hoc analysis 2023 Rondepierre et al

    To be read it as 'restricted to' so no other organ involvement other than the skin. e.g: Tyrosine kinase 2 and interferon regulatory factor 5 polymorphisms are associated with discoid and subacute cutaneous lupus erythematosus Abstract: Lupus erythematosus (LE) is a heterogeneous disease...
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    Times: NHS plan to help millions stop using antidepressants and painkillers

    "The framework includes serving up art or music classes for those suffering from chronic pain as alternatives to medication." That is a very poor characterisation of what the document actually says. What is proposed is that GPs would refer to pain clinics - the route any individual takes in...
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    How many of you have cats and how many have been tested for cat scratch disease?

    Bartonella henselae does belong on the list of 'diseases that can have chronic impacts' Musculoskeletal Manifestations of Cat Scratch Disease Abstract "Background.Musculoskeletal manifestations (MMs) are considered to be rare in cat scratch disease (CSD) and are not well characterized. We...
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    Times: NHS plan to help millions stop using antidepressants and painkillers

    All that stuff fills me with horror - but it does have a role for some people, clearly pain isn't removed but for those who may have problems avoiding unwanted rumination on their discomfort, having someone else go through the process of introducing them to a new, and supported activity seems to...
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    Times: NHS plan to help millions stop using antidepressants and painkillers

    I posted for thoroughness - a possible resource for others, and I've still only skim read. However, I think The Times article is wrong in its presentation of document being a guidance to GPs - the sub head: "GPs urged to prescribe art classes instead of codeine in drive to avoid US-style opioid...
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