Search results

  1. C

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Applying judgements I'd expect of any piece of research I can't say I'm wildly enthused by claims that: "the majority of people with Long COVID report or meet scoring thresholds for PEM/PESE" when the two quoted studies are small relative to the reported numbers experiencing PASC and are wholly...
  2. C

    Advice for difficulty texting on smartphone due to issues with fine motor skills/coordination

    You are not alone ! I do have a large button basic mobile*, although hardly every have use for it - but does mean I can send/receive texts if necessary. As far as I can tell any important web based services that require an app for mobile use, are accessible via their websites - certainly true...
  3. C

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    I doubt that more than 50% of Westminster MPs have a Welfare Advisor (WA) on staff - many don't even have a physical office in their Constituency. It's a weird situation - a few MPs started employing WAs, legitimately paid for from Parliamentary expenses, in the early 80s as unemployment shot...
  4. C

    Clinician-rated outcomes of patients with functional neurological disorders treated in an outpatient clinic 2023 LaFrance Jr. et al

    Earlier paper in which details therapeutic Topics, Targets, and Modalities for Neurobehavioral Therapy Treatment of PNES. Treatment of functional neurological disorder: current state, future directions, and a research agenda Full document SciHub: https://sci-hub.se/10.1017/s1092852920002138...
  5. C

    Treatment of functional neurological disorder: current state, future directions, and a research agenda, 2020, LaFaver et al

    Treatment of functional neurological disorder: current state, future directions, and a research agenda Kathrin LaFaver, William Curt LaFrance Jr, Michele E. Price, Phyllis B. Rosen, Mark Rapaport Abstract Functional neurological disorder (FND) encompasses a complex and heterogeneous group of...
  6. C

    A Systematic Evaluation of Machine Learning-based Biomarkers for Major Depressive Disorder across Modalities, 2023, Winter el al

    Preprint A Systematic Evaluation of Machine Learning-based Biomarkers for Major Depressive Disorder across Modalities Nils R. Winter, Julian Blanke, Ramona Leenings, Jan Ernsting, Lukas Fisch, Kelvin Sarink, Carlotta Barkhau, Katharina Thiel, Kira Flinkenflügel, Alexandra Winter, Janik...
  7. C

    Stuart Ritchie, science journalist, articles on science fraud and open science

    merged thread i News Science is bad at measuring depression, and it is ruining attempts to understand it Stuart Richie "If you break your leg, you can get an X-ray. You can see the exact place where the bone is broken – we know exactly what’s causing you the problem. That’s not just the...
  8. C

    Ordeals and the Empathy Gap

    Ordeals and the Empathy Gap Sam Freedman 'Comment is Freed' substack Long read, UK focused but wider relevance: Exerpt An under-discussed aspect of covid policy was the speed with which government supported people financially and temporarily solved social problems. Furlough is widely seen as...
  9. C

    UK clinic: Harley Therapy

    Are we not men ! ? !
  10. C

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    APPGs aside (and I echo Trish's comment on the ME/CFS APPG) the UK Parliament is relatively weak compared to the Government, this something that has accelerated over the last 40 years. Individual MPs have very little actual power and even the most dedicated will find progress difficult unless it...
  11. C

    Adults with ME/CFS report surprisingly high rates of youth symptoms: A qualitative analysis of patient blog commentary 2023 Johnson, Jason et al

    "Informed Consent Due to the public nature of the blog commentary and poll, the author’s Institutional Review Board deemed informed consent unnecessary." How would we feel if this approach was used by the "usual psych suspects" to advance a psychosomatic or sectarian BPS agenda ? Clearly we...
  12. C

    Gammaherpesvirus infection drives age-associated B cells toward pathogenicity in EAE and MS (2022) Mouat et al.

    Link:) Gammaherpesvirus infection drives age-associated B cells toward pathogenicity in EAE and MS Mouat et al, 2022 Open Access
  13. C

    Somatic symptoms in burnout in a general adult population 2023 Hammarström et al

    Shirom-Melamed Burnout Measure (SMBM) How Do You Feel at Work? 1. I feel tired 2. I have no energy for going to work in the morning 3. I feel physically drained 4. I feel fed up 5. I feel like my “batteries” are “dead” 6. I feel burned out 7. My thinking process is slow 8...
  14. C

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Not an expert - just some past involvement in complaints in very different circumstances - but: my inclination is that to be effective a complaint needs to be highly focused, in this case it would be specific to 'the harm done to patients by the publication of the Larun Review' AND 'the failure...
  15. C

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Just mentioning this here as a potential future backstop. As a Registered Charity, Cochrane is subject to England & Wales charity law, and from that is subject to a number of limitations of how it can act - including how it can act in its impact on the public (generally) and in certain...
  16. C

    UK: Action for ME: Media Guidelines for reporting on M.E.

    There's a difference between a generalised document for the media and a Press Release - the former is there to give a journo a basic map of the ground. Press Releases have a set format and should offer specific details plus a headline or two. Seems to me that the AfME Guideline does a good...
  17. C

    Physical health of Post-9/11 U.S. Military veterans in the context of Healthy People 2020 targeted topic areas: 2023 Cypel et al

    CFS 4.3% of sample versus 1.1% of control group (study ended 2018 so no COVID involvement) M:F CFS ratio of sample = 0.42:1
  18. C

    Monocyte migration profiles define disease severity in acute COVID-19 and unique features of long COVID 2023 Scott et al

    Study population average age =60, male:female 1.76:1, high levels of overweight and pre infection morbidity.
  19. C

    UK: Action for ME: Media Guidelines for reporting on M.E.

    Re: the 'of all ages' claim. I think this is fair. While the MEA doesn't discriminate against under 18s it doesn't have any specific services for those under 18. It's important to understand that offering services and engagement to younger age groups means meeting a higher regulatory burden...
  20. C

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Hunt’s disability plans put 1 million people at risk of losing £350 a month, IFS says Extract: The Institute for Fiscal Studies said up to 1 million people currently on incapacity benefits could lose about £350 a month as a result of dropping the work capability assessment (WCA), which...
Back
Top