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Something can be very effective for some patients while being ineffective or harmful to others. I guess this paper is foundational for the claim of effectiveness: The International POTS Registry: Evaluating the Efficacy of an Exercise Training Intervention in a Community Setting (SciHub)...

Reduced exercise capacity, chronotropic incompetence, and early systemic inflammation in cardiopulmonary phenotype Long COVID > (S4ME) "Although exercise is unlikely to cure LC, exercise training is the only intervention demonstrated to improve exercise capacity in chronotropic incompetence...

Relies on this for the "half of LC patients develop ME": Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is common in post-acute sequelae of SARS-CoV-2 infection (PASC) > (S4ME) a whole 140 non selective subjects !

This seems to be the only substantial study to suggest reinfection increases risk of PASC, Acute and postacute sequelae associated with SARS-CoV-2 reinfection (S4ME) - the authors wrote: "Our results show that beyond the acute phase, reinfection with SARS-CoV-2 contributes substantial additional...

Contradictory data: New-onset, self-reported long COVID after coronavirus (COVID-19) reinfection in the UK discussion here: https://www.s4me.info/threads/new-onset-self-reported-long-covid-after-coronavirus-covid-19-reinfection-in-the-uk-2023-ons.33431/

New-onset, self-reported long COVID after coronavirus (COVID-19) reinfection in the UK Download as PDF Main points 4.0% of adults (aged 16 years and over) and 1.0% of children and young people (aged 2 to 15 years) reported having long COVID 12 to 20 weeks after a first coronavirus...

I think that makes sense, however "management strategy" has implications for the expectations of health professionals, for example: A Taxonomy for Disease Management TABLE 1. Principles and Recommendations From the AHA’s Expert Panel on Disease Management 1. The main goal of disease...

The MEA isn't listed as being a WME Alliance member although AfME is, and Sonya Chowdhury is co chair of WME Alliance. I wouldn't minimise the difficulties that an organisation may have in co-ordinating specific activities with other organisations which may be operating in very different...

Stuart Ritchie comment: https://www.s4me.info/threads/stuart-ritchie-science-journalist-articles-on-science-fraud-and-open-science.21166/page-3#post-475467 Provides a link to this data: Office for Health Improvement and Disparities data = Microsoft Power BI file

Covid vaccines are not linked to excess deaths, despite what the anti-vaxxers believe "Now there’s a new meme in the anti-vaccine world, and it has to do with excess deaths. Bridgen and others have noticed that the UK’s Office for National Statistics (ONS) is still reporting the number of...

Latest ONS figures (11/05/23) Weekly all-cause mortality surveillance (week 16 report, up to week 12 2023 data reports No Excess in week 12, see Table 1. Weeks 1, 2 and 3 saw excess in 15 - 64 year olds, and weeks 4, 10 and 11 saw excess deaths in 65+ year olds. Weekly Excess is always subject...

I think that is in danger of minimising the challenge - it's way bigger than writing a better media release, and while we have larger and smaller ME/CFS orgs - none of them is large in terms of media presence, and size matters. The ME month/week/day is a notable problem because no one owns it...

It might be that there are some parallels with how the UK BPS school has approached ME/CFS but I think what we see in the PA article is amuch wider problem, which is the commoditisation of media metastasising the commoditisation of everything the media touches. Medicine is not an easily...

How things work: 1. Date pops up in Press Association editorial diary of events. 2. PA Editorial farms out "ME Week" to Imogen Brighty-Potts who hasn't a clue about ME, but can bang out 400 words on any old crap and has a trendy health and fitness Dr in her address file. 3. Imy emails Dr Anand...

I like Bergstrom's collegiate approach to challenging bad science, nothing quite like rewriting Godwin's Law to read "racist", to ensure everyone is on the same page when it comes to the challenges of scientific publishing.

Psychologist from Uni Sports Psych Dept teams up with computer wonk from the Engineering dept, overseen by the latter's Prof, to create an app.

Article here: https://www.s4me.info/threads/fake-publications-in-biomedical-science-red-flagging-method-indicates-mass-production-2023-sabel-et-al.33307/

Fake Publications in Biomedical Science: Red-flagging Method Indicates Mass Production Bernhard A. Sabel, Emely Knaack, View ORCID ProfileGerd Gigerenzer, Mirela Bilc ABSTRACT Background Integrity of academic publishing is increasingly undermined by fake science publications massively...

Measure is at 4 weeks plus which may poorly differentiate between slow recovery and something of greater chronicity. Co-morbidity is a clear correlation (already ill people stay sicker longer ?). Interesting that the most wealthy decile appears in the data at three times the rate of the most...