Search results

  1. C

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    If the claim is against the NHS then there's a whole bureaucratised process Advice for claimants* see also Negligence in the NHS: liability costs the NHS pays out over £2 billion a year in claims, most settled without ever getting to Court or public attention. If the NHS itself is not liable...
  2. C

    Health state life expectancies, UK: 2018 to 2020

    https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/healthandlifeexpectancies/bulletins/healthstatelifeexpectanciesuk/2018to2020#disability-free-life-expectancy-in-the-uk
  3. C

    Health state life expectancies, UK: 2018 to 2020

    ONS Health state life expectancies, UK: 2018 to 2020 1. Main Points Healthy life expectancy (HLE) at birth in the UK showed no significant change between 2015 to 2017 and 2018 to 2020. In Scotland, there was a statistically significant decrease of more than a year in male HLE at birth...
  4. C

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Patients/advocates are unlikely to have editorial control, it's naive to assume that any programme commissioner or production team are going to be 'on our side' or maintain a brief to give ME/CFS advocacy a boost. In the case of UK TV broadcasters they are under legal restrictions regarding...
  5. C

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    For a legal route one has to start with an identifiable wrong - the wrong may be contested but there has to be some capacity for the wrong to be describable in a way that is meaningful in common language and which is then translatable into a legal context, not every 'wrong' is capable of being...
  6. C

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    I don't know how much the an edition of Panorama costs but there's no way department heads could justify not broadcasting a finished programme without some major public legal process or the intervention of Senior management which would itself bring publicity. What may be more plausible is that...
  7. C

    Fit For Work – Three Part Series on BBC Radio 4

    UK Public Spending Details for 2024 https://ukpublicspending.co.uk/year_spending_2024UKbn_17bc1n_40000102#ukgs302 Pensions: Total 191.1 0.0 0.0 191.1 Sickness and disability 56.6 0.0 0.0 56.6 Old age 132.7 0.0 0.0 132.7 Welfare...
  8. C

    UK: New £14 million investment targets rare diseases

    For at least 30 years it's been a cornerstone of ME advocacy that there are large numbers of patients which demands high levels of investment - UK quoted figures usually 125,00 - 250,00, so at least 3.5 x the maximum for a rare disease.
  9. C

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    I don't understand. Who are the defendants against who a claim is to be made ? NICE is the responsible body for guidelines - what recompensable harm is that NICE is can be sued for ? Pace was the responsibility of its investigators, again what recompensable harm is to be sued for ? The fatigue...
  10. C

    Issues to consider in dietary intervention studies in ME/CFS

    Agree with all the above, but the question: "how feasible it is to measure people’s experience of fatigue and change in severity of fatigue in response to a nutrition intervention. .. ?" can't be answered with any precision without the foundational hypothesis for the trial of a...
  11. C

    Review Understanding functional neurological disorders: From biological markers to pathophysiological models, 2023, Conejero et al

    Author affiliations: a Département de psychiatrie, CHU de Nîmes, PSNREC, Inserm, université de Montpellier, Nîmes, France b Département de Neurologie, CHU Nîmes, université de Montpellier, institut de génomique fonctionnelle, University Montpellier, CNRS, Inserm, Montpellier, France c Pôle...
  12. C

    How does the NHS compare to the health care systems of other countries?, 2023, Anandaciva

    Ministers set out plan to train and keep more NHS staff More doctors and nurses will be trained and thousands of new roles will be created to work alongside them, as part of a major NHS England workforce plan. University places for medical students will double, a new apprenticeship scheme for...
  13. C

    Biopsychosocial complexity in functional neurological disorder 2023 Joos et al

    What is the route from Engel's biopsychosocial "model" to a "biopsychosocial disorder" ? Does this mean a patient can be 'socially disordered' ?
  14. C

    Nature: Long COVID: answers emerge on how many people get better, 2023, Marshall

    Quoted article: https://www.s4me.info/threads/recovery-and-symptom-trajectories-up-to-two-years-after-sars-cov-2-infection-population-based-longitudinal-cohort-study-2023-ballouz-et-al.33557/
  15. C

    Discordance between Adolescents and Parents in Functional Somatic Symptom Reports:... 2023 Hogendoorn, Rosmalen et al

    Problems with the FSS concept aside, I think that authors are dealing with a real phenomenon. It is undoubtedly the case that young people report a high number of potentially significant medical symptoms which are not currently related to known pathophysiology, Table 1 of the current study...
  16. C

    Beyond Applause? Improving Working Conditions in Long-Term Care

    Document has implications for 'care' in general especially levels of pay, recruitment and levels of provision e.g: Figure 2.15. Wages of personal care workers kept pace with the average wage over the past decade Wages of personal care workers in residential and non-residential care sectors as...
  17. C

    Beyond Applause? Improving Working Conditions in Long-Term Care

    OECD Beyond Applause? Improving Working Conditions in Long-Term Care Executive summary The COVID-19 pandemic put a huge strain on the health and care systems, and it was thanks to the strenuous work and commitment of care workers that many lives were saved and people in need got support. We...
  18. C

    How does the NHS compare to the health care systems of other countries?, 2023, Anandaciva

    The Kings Fund How does the NHS compare to the health care systems of other countries ? Siva Anandaciva *Comparing the health care systems of different countries can help politicians and policy‑makers assess how the UK health care system is performing and where it could improve. *For...
Back
Top Bottom