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We had a year of 'Claire'........ (From June 2924.....)..... Meetings, emails, vagueness and singing from a different hymn sheet (C with other high level managers, MEA ' involvement' opinions outside our Task and Finish Governance. via Russell F...a willing horse it would appear to us...

Not if we challenge...... I am angry that 25 years of work and 2 years of successful intensive effort under a Task ^ Finish Group has been wiped off the face of the earth. One of the speakers for 2nd July, tried from June, July 2024, to systematically dismantle our work. Specification...

:angelic::angelic::angelic::angelic::angelic::angelic::angelic:!!!! PS. I confused professor O'Brien with someone else at ELAROS who worked at BT Labs... He said he was Essex. I am an Essex gal...... I have trackeddisastrous ME provision in Essex (satellite of Barts).... ...

Called back by Proff Paul O'Brien. Very helpful. A seminar with questions permitted during and after. Seminar, mainly aimed at Clinical staff involved with LC. Suggests it's all NICE compliant ( for which ever condition..!) Fibro. ME...etc I specifically mention CYP matters especially 18-25...

I like going to meetings and events.. Especially those recorded and there in perpetuity.. Time well spent. To capture unwary...

Have booked to watch.. Have rung for further info..... I have not revealed who I am or why I am interested. I will receive a call back.... I will let you know what I find out .....

In garden trying g to calm down.... Me thinks an attendance at next ICB Board meeting is attended next in July

So glad you said this Trish....you have no idea how damaging MEA's involvement has been since July 2024.

Good.... they need to..

In confidence not for sharing please.... Already we in Suffolk have been in contact this week with Charles over real concerns about MEA's involvement since May 2024. We want a press release to properly state the facts of our service development situation. We want credit given where credit...

:mad::bawling::oops::wtf::(:nailbiting: I am so cross.......What are MEA up to...?

Absolutely different ball, different pitch..... different game! Suffolk departed from CB and Imega 20 years ago after a few APPG spats..... Connie RIP Localme rules OK!

So, compassionate Paul, whoo, awhile 7 weeks thinking he was dying ...... What a shock!? Professor of infectious diseases, Paul Garner, suffered with the symptoms of Coronavirus for seven weeks, he told @chriswarburton about his experience... Listen via @bbcsounds http://bbc.in/2PhIk3d

If I recall, the scuba dooba trip,was also a professional conference trip, so a Multi tasker to boot! Will check this out, but if I recall, also a lot of interviews and broadcasts too! No PEM on Paul!

What about PAC? Post Activity CRASH? Chronic Relapse & Adverse Symptom Heightening

https://www.healthrising.org/blog/2025/03/29/crazy-trump-administration-long-covid/?

Agree to all said here.... If we can 'buck the trend' in Suffolk.....depite all the attempts to subvert the process of Coproduction.... I for one will be shouting from the rooftops...... Time will tell...... sooner rather than late June!

No surprise. https://www.longcovid.org/impact/news/vital-long-covid-services-closing-across-the-uk-despite-ongoing-need-new-research-warns

Hi Linda, It's been a while since MELN was set up (in part via AfME?) NB their link to you is 'broken' shows an error message. I understand members of MELN are involved in the DHSC Delivery Plan. Also Christine Harrison BRAME. Several of MELN have been in contact with me directly for update on...

This struck a chord... March 2025, we are working on it in Suffolk. (Caroline is a regular visitor here as well!) Hope by end of April, all will be revealed in our personal campaign to build services for ME...