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Come 1st August, an agreed Draft Specification and dedicated pathway should be finalised and in the public domain from Suffolk NE Essex ICB and Suffolk GP Federation, (plus Essex GP equivalent who have taken over current tender contract.) SNEE with specialist steer from CureME LSHTM ME...

I was involved and I didn't receive a letter?:unsure::confused::cautious::rolleyes:

This was written into our specification..... And by a ME Specialist trained community team.... Cannot wait to see if it has survived the 'buggering about'.. of the last year? We are still persona non grata with ICB and ICP!

Exactly right. That's why we fight and fought over the specification for 2 years... But who knows what remains of our 'red flag requirements' - all mentioned avove, after the likes of 'alternative thinkers' within ICB, court likes of MEA *non clinical* who are courted in turn by...

Also Vikki McKeever GPwas involved with sessions I attended.. Slippery with words I say. I can't be bothered to revisit the notes and those damn Miro boards.

Email finally today to MEA RF Sent today. 'Dear Russell, I hope you had a good holiday break until 21st July. As yet, you do not appear to have responded to my emails or actioned my reasonable requests? Whilst I do not 'qualify', according to your criteria, as host of the Seminar, facilited...

Absolutely.....

Covid effects.... was it wise to attempt scuba diving following a covid 19 infection an ( possible respiratory consequences) ? That apart from the exercise and possible PEM?

I presume so...... I will find out!

At least though old news, people are finding FUNCAP and Visible useful.... I understand Elaros are being invited to Forward ME....? On who's suggestion, organised by whom.... that I'd be interested to know..?

https://quadram.ac.uk/new-tool-for-measuring-functional-capacity-developed/?

Contradicts what was said in Exeter Coroner's Inquiry last year by interim Medical Director Dr Anthony Hemsley.

'There need to be really good academic clinicians wanting to run such services. I hope that will come soon but just at the moment there are no very obvious candidates practicing in the UK....' Yet! Praying hard. Preparing for disappointments, that is ME and D.. Suffolk Persona non gratas...

I attended a Zoom conference today held by CureME. One of the attendees was a patient MEA Trustee. I DM him during the session. I asked for him to contact me by phone. I wait with growing consternation.

I am mortified that Keith has got entangled with this.....

I think S4ME, and Trish's incredibly fair and steady hand unpicking these 'broken pieces' is now at a point needed some direct action collectively from S4ME? A Task Force approach? Andy Peter Trish etc Hutan, David T Jonathan to thrash this over? Brian Hughes? Keith G? Academics like Luis...

5th June revisited. JemB... ' I'm massively confused here... so the NHS & DWP are developing an app to do (in DWP case) some nefarious thing under the guise of 'assisting' people like us. And ELAROS are the app developers, who're walking hand in hand with MEA & their PROMs project in order to do...

I have gone back to the beginning of this thread.... It seems our worst fears and our apprehensions about direction of travel were completely justified. MEA BAcME Eleros and our local Norfolk group lead who is imposing his views on our patients and SA's..... FYI. G who is...

Latest blog from the ICB's medical director Dr Frankie Swords - NHS Suffolk and North East Essex ICB https://share.google/LJfjY872H76C25qNJ A New 10-Year Vision for the NHS On 3rd July, the Government published the long-awaited NHS Long Term Plan. It’s a bold and necessary step forward...

I attended my Suffolk NE Essex Board meeting this week. The section of relevance came under agenda item. Strategy Section 7 and 8 Richard Watson. With Government 10 year plan, and ICB reorganisation, am afraid ICBs will have no choice. Richard assured me, no contract has been signed with...