This makes me so sad. RIP Jonathan Kerr. Stephen Holgate was also cited.... Pesticides and OP exposure were suggested.
I met with the members of Royal Commission on Environmental Pollution including Holgate in advance of this study and their RCRP report. Wessley even tried to infiltrate this...
Expanding the rheumatology lens: should we embrace POTS and post-infectious syndromes?
Brittany L Adler brit.adler@jhmi.edu
Affiliations & NotesArticle Info
Get Access
Share
More
Like many of my colleagues who care for patients with dysautonomia, chronic fatigue syndrome, and...
Agree with Jo E re review of NICE.
Gillian Leng was an ally... she went
DHSC Delivery Lead Wendy Lippmann was an ally... she was moved out.....
Wendy has a daughter with ME....
'A simple tool like the disability scale we use being confirmed so if someone is more severe it’s calibratable to eg other serious illnesses..
In 2018, we put some suggestions leaflets etc for our Suffolk GP AGM and exhibition.
An A4 symptom scoring chart was part of this and has proved...
Specification (draft as amended v 17 submitted on public access In-Tender)
Used during Procurement Process ended 30th May.
No idea what latest agreed final Specification says .....
No idea whath'mobilisation' horse trading negotiations have been, or are currently underway.
Now with ICB...
Peter said,
'What if we can take DecodeME, our own documents and yes, the delivery plan and go to local services and ask for what we want. Not depending upon charities or other intermediaries to communicate it.'
Yes!
Section 1: Authors and Development Process
The first edition of this document was compiled in 2017 by the severely affected
working group of the British Association for CFS/ME (BACME) with help from the
BACME executive and other contributors, listed in Appendix A. The final version
incorporated...
The chat this morning was about a model of care and possible specification and Pathway. SNEE draft version 17 was in public domain on Find a tender.
If we can provide that as a discussion point?
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.