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  1. Suffolkres

    NICE Clinical Knowledge Summaries: Tiredness/Fatigue in adults (includes CFS).

    Moved from this thread It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been asking pertinent questions.... Baroness Scott of Needham Market Liberal Democrat To ask Her Majesty's Government why Chronic Fatigue Syndrome (CFS)...
  2. Suffolkres

    Swiss Re: Expert Forum on secondary COVID-19 impacts, Feb 2021

    Delusional? 'Desperadoes"? .......'A Moments sunlight'... The sun has got its hat on......!
  3. Suffolkres

    Swiss Re: Expert Forum on secondary COVID-19 impacts, Feb 2021

    The sun has got it’s hat on Hip Hip Hip hurrah The sun has got it’s hat on Hat for Michael & Swiss Res The sun has got his hat on hip-hip-hip hooray The sun has got his hat on And Sharpie’s out today Now we'll all be happy Hip-hip-hip hooray The sun has got his hat on And Covid’s bound to pay...
  4. Suffolkres

    Swiss Re: Expert Forum on secondary COVID-19 impacts, Feb 2021

    Moved post https://www.swissre.com/institute/conferences/expert-forum-on-secondary-covid-19-impacts.html Time (CET) Session No./Recordings Topic Presentations Expert Intro - Recording Introduction and welcome Direct longterm impacts of the pandemic Christoph Nabholz, Head Life...
  5. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Agreed, Typo - I meant to quote milk ( lactose) and gluten. Apologies!
  6. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    https://www.meresearch.org.uk/milk-intolerance/ Milk( &) gluten ( anecdotally) an issue for my two men. 'Food intolerances also have a significant role in ME/CFS. Sensitivity to foodstuffs is one of the possible “immune, gastro-intestinal & genitourinary impairments” used for diagnosis (see...
  7. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Allergy is found in a high % of people with a diagnosis of ME and CFS. No sure if this is comorbidity or a stand alone difficulty. (Husband and son both with CCC diagnosis of ME also are prone to allergic symptoms, eczema asthma hives dermatitis - atopic, and have dietary and other intolerance...
  8. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    For some, comorbidity or it could be stand alone difficulty?
  9. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    https://meassociation.org.uk/2017/03/mast-cell-disorders-and-mecfs-note-from-dr-charles-shepherd-following-last-nights-bbc-programme-16-march-2017/ https://patient.info/doctor/mastocytosis-and-mast-cell-disorders Mastocytosis and Mast Cell Disorders Authored by Dr Laurence Knott, Reviewed by...
  10. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    https://grantome.com/grant/NIH/R01-NS071361-03 Public Health Relevance Chronic Fatigue Syndrome (CFS) is neuroimmunoendocrine disorder with no definite pathogenesis or curative therapy presently available. Recent evidence suggests that CFS may be related to activation of a unique immune cell...
  11. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Actually downloaded in 2005, not 1999 - I too in my retirement phase am getting too old for all this......! It is very interesting and very well referenced. Food for thought? https://pubmed.ncbi.nlm.nih.gov/16282830/ Mast cells, antidepressants and chronic fatigue syndrome Theoharides...
  12. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Thank you Trish for this helpful response. Interestingly, I found a paper on Mast Cell issues in my 1999 file of print outs of issues overlapping or involving ME. I will revisit and read to see if it has any relevance to the discussion and post reference if it is.
  13. Suffolkres

    Mast Cell Activation Syndrome (MCAS) - discussion thread

    Good to see this feedback and to see the comorbidities unravelling.... albeit slowly!
  14. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Cosy cabal n'est pas? Alistair Miller - Military connection SW Gulf War Military of 'Deference' Connection ....... https://www.mrc.soton.ac.uk/cmhw/professor-nicola-fear/ Professor Nicola Fear Nicola joined the Academic Department of Military Mental Health at King’s College London (KCL) in...
  15. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Not likely as she is at Kings, (as is Hoptof and SW...) this is a 2018 publication.... https://kcl-mrcdtp.com/wp-content/uploads/sites/201/2018/10/Theme-2-Project-Catalogue-201920-updated2.pdf 2822.2 Chronic Fatigue Syndrome, occupation and mental health; what enables people with CFS to...
  16. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Unlikely.... sigh again! Consultant profiles Contacts PA: Farhan Quadri PA email: farhan.quadri@gstt.nhs.uk Area of expertise: work related disorders and diseases. Biography chief medical adviser to Houses of Parliament 1999-present reader in occupational health, King’s College London.
  17. Suffolkres

    UK Faculty of Occupational Medicine: Guidance for healthcare professionals on return to work for patients with long-COVID, 2021

    Moved from this thread ____________ https://www.fom.ac.uk/media-events/publications/fom-guidance Just found but I haven't read it yet. However, Dr Ira Madan has 'FORM' not 'FOM' on ME claiming to be a bit of an authority...(2006 precursor NHS Health & Work Guidance on ME to PACE and NICE...
  18. Suffolkres

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Urgent help needed. Perhaps the committee can help or the patient NICE reps? Where can the analysis of PACE can be found in the NICE Evidence Reviews please? FINE was hard to find when I was working on feedback on draft - like just about everything else - because the reference numbers in the...
  19. Suffolkres

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Mmmmm........ Alistair was a medical advisor to AfME........ Another physician suffering from SMS, Short Memory Syndrome...? https://meassociation.org.uk/2015/02/minutes-of-meeting-of-forward-me-group-main-speaker-dr-alastair-miller-20-january-2015/
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