Moved from this thread
It was suggested yesterday that this Member of the House of Lords local to me is joining Forward ME? She has been asking pertinent questions....
Baroness Scott of Needham Market Liberal Democrat
To ask Her Majesty's Government why Chronic Fatigue Syndrome (CFS)...
The sun has got it’s hat on Hip Hip Hip hurrah
The sun has got it’s hat on Hat for Michael & Swiss Res
The sun has got his hat on hip-hip-hip hooray
The sun has got his hat on
And Sharpie’s out today
Now we'll all be happy
Hip-hip-hip hooray
The sun has got his hat on
And Covid’s bound to pay...
Moved post
https://www.swissre.com/institute/conferences/expert-forum-on-secondary-covid-19-impacts.html
Time (CET)
Session No./Recordings
Topic
Presentations
Expert
Intro - Recording
Introduction and welcome
Direct longterm impacts of the pandemic
Christoph Nabholz, Head Life...
https://www.meresearch.org.uk/milk-intolerance/
Milk( &) gluten ( anecdotally) an issue for my two men.
'Food intolerances also have a significant role in ME/CFS. Sensitivity to foodstuffs is one of the possible “immune, gastro-intestinal & genitourinary impairments” used for diagnosis (see...
Allergy is found in a high % of people with a diagnosis of ME and CFS. No sure if this is comorbidity or a stand alone difficulty.
(Husband and son both with CCC diagnosis of ME also are prone to allergic symptoms, eczema asthma hives dermatitis - atopic, and have dietary and other intolerance...
https://meassociation.org.uk/2017/03/mast-cell-disorders-and-mecfs-note-from-dr-charles-shepherd-following-last-nights-bbc-programme-16-march-2017/
https://patient.info/doctor/mastocytosis-and-mast-cell-disorders
Mastocytosis and Mast Cell Disorders
Authored by Dr Laurence Knott, Reviewed by...
https://grantome.com/grant/NIH/R01-NS071361-03
Public Health Relevance
Chronic Fatigue Syndrome (CFS) is neuroimmunoendocrine disorder with no definite pathogenesis or curative therapy presently available. Recent evidence suggests that CFS may be related to activation of a unique immune cell...
Actually downloaded in 2005, not 1999 - I too in my retirement phase am getting too old for all this......!
It is very interesting and very well referenced.
Food for thought?
https://pubmed.ncbi.nlm.nih.gov/16282830/
Mast cells, antidepressants and chronic fatigue syndrome
Theoharides...
Thank you Trish for this helpful response. Interestingly, I found a paper on Mast Cell issues in my 1999 file of print outs of issues overlapping or involving ME. I will revisit and read to see if it has any relevance to the discussion and post reference if it is.
Cosy cabal n'est pas?
Alistair Miller - Military connection
SW Gulf War Military of 'Deference' Connection .......
https://www.mrc.soton.ac.uk/cmhw/professor-nicola-fear/
Professor Nicola Fear
Nicola joined the Academic Department of Military Mental Health at King’s College London (KCL) in...
Not likely as she is at Kings, (as is Hoptof and SW...) this is a 2018 publication....
https://kcl-mrcdtp.com/wp-content/uploads/sites/201/2018/10/Theme-2-Project-Catalogue-201920-updated2.pdf
2822.2 Chronic Fatigue Syndrome, occupation and mental health; what enables people with CFS to...
Unlikely.... sigh again!
Consultant profiles
Contacts
PA: Farhan Quadri
PA email: farhan.quadri@gstt.nhs.uk
Area of expertise: work related disorders and diseases.
Biography
chief medical adviser to Houses of Parliament 1999-present
reader in occupational health, King’s College London.
Moved from this thread
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https://www.fom.ac.uk/media-events/publications/fom-guidance Just found but I haven't read it yet. However, Dr Ira Madan has 'FORM' not 'FOM' on ME claiming to be a bit of an authority...(2006 precursor NHS Health & Work Guidance on ME to PACE and NICE...
Urgent help needed. Perhaps the committee can help or the patient NICE reps?
Where can the analysis of PACE can be found in the NICE Evidence Reviews please?
FINE was hard to find when I was working on feedback on draft - like just about everything else - because the reference numbers in the...
Mmmmm........ Alistair was a medical advisor to AfME........ Another physician suffering from SMS, Short Memory Syndrome...? https://meassociation.org.uk/2015/02/minutes-of-meeting-of-forward-me-group-main-speaker-dr-alastair-miller-20-january-2015/
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