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  1. Suffolkres

    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    I correct you. We have been trying to that very thing. A model Spec A model Pathway The agreed contractual procurement time frame. 5 years The agreed ring fenced money £5.4 million An endorsed Co produced business plan Preferred provider with suggested workforce model With suitablw clinical lead...
  2. Suffolkres

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    I will let 25% Group repand member of Forward ME know about this 'wonderful' opportunity.
  3. Suffolkres

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    Here we go again.. Trish, have you booked...? I have. I am still being blanked by MEA RF.....
  4. Suffolkres

    UK BACME ME/CFS Guide to Therapy 2025

    Increasingly it seems Paid employees in MEA have too much sway, influence and control. I regret this will damage MEA.
  5. Suffolkres

    Crowdfunding for David Tuller during October 2025

    Just donated late in the day!
  6. Suffolkres

    Trial Report Blood Flow To The Head Is Reduced in a Patient With Myalgic Encephalomyelitis With Confirmed Post-Exertional Malaise, 2024, Lee

    1) Researchers tested an new in-ear device to estimate blood flow to the brain. In an ME/CFS patient blood flow decreased by 23% after an exercise test compared to only 5% in the healthy control participant. 2) The device is made by the company Lumia and uses infrared light on a shallow ear...
  7. Suffolkres

    UK House of Lords/ House of Commons - relevant people and questions

    https://en.wikipedia.org/wiki/Rosalind_Scott,_Baroness_Scott_of_Needham_Market
  8. Suffolkres

    UK House of Lords/ House of Commons - relevant people and questions

    Baroness Scott is lib Dem from Stowmarket Peter
  9. Suffolkres

    ME Association's 2024 Annual Report released.

    That's exactly what the outcome of MEAi tervention will be....
  10. Suffolkres

    ME Association's 2024 Annual Report released.

    Thanks for the analysis as I haven't band width. I ha w issues with paid employees stance though...
  11. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    He was programmed to come back..... enough to steer new service.. He gave a presentation to Service Users Engagement Group ( that D and I are excluded from) ...I was told......
  12. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    They will have your record transfered.. plus, the Senior Lead OT from ECCH Louie H, transfered last year to 'SNELCAS' .. now closed under ESNEFT but likely shifted across under tupe
  13. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Slightly confused. Formerly SNEE ICB area had a contract for ME and CFS with provider 'East Coast Community Health' ( based outside SNEE in Waveney Norfolk ICB).Set up in 2013. Also they had a Long Covid Service at ESNEFT Ipswich Hospital. The new service fully operational from 1st October...
  14. Suffolkres

    Jeremy Jeffs - ME/CFS photography projects

    Really glad for Jeremy to present his outstanding g work, after we met with at the outset of all this......
  15. Suffolkres

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    I remember the mantra with WCA.. Can you do XYZ? Yes, I may be not Repeatedly, Reliably Safely....
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