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  1. Suffolkres

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    I kept trying on Mac on phone via pass codes email you name it...for 30 mins.. Then I got in! About 65 people in attendance From: Barbara Sent: 09 December 2025 15:48 To: autonom-e <autonom-e@elaros.com> Subject:Re: The launch of the MEA Clinical Assessment Toolkit for Clinical Services -...
  2. Suffolkres

    UK doctors knowledgeable in ME/CFS?

    I think this excludes Waveney who ate wedded to Norfolk. However, the 'new' ICB will be Suffolk and Norfolk... ICB Confusing n'est pas?
  3. Suffolkres

    UK doctors knowledgeable in ME/CFS?

    https://events.sneetraininghub.org.uk/events/ipswich-and-east-suffolk-gp-training-and-education-afternoon/2025-11-12 Dr Nacul training event for GPs and AHPs ..
  4. Suffolkres

    UK doctors knowledgeable in ME/CFS?

    He has a base at London School of Hygiene and Tropical Medicine... and since since September, clinician leading our Suffolk ME and Long Covid new Specialist Service. https://www.lshtm.ac.uk/aboutus/people/nacul.luis
  5. Suffolkres

    Loss of CRH neurons and other neural changes in ME/CFS autopsy study - University of Amsterdam

    I think there is annectdotal evidence of low cortisol and low thyroid due to low drive to thyroid and adrenals from hypothalamus - pituitary glands. I have been interested in this rezewrch idea for 26 years.... Even spoke to Simon Wessley and Anthony Cleare at the Fatigue 2002 Conference in...
  6. Suffolkres

    United Kingdom: Sussex & Kent ME/CFS Society News

    https://measussex.org.uk/build-on-the-positives/
  7. Suffolkres

    United Kingdom: Sussex & Kent ME/CFS Society News

    https://measussex.org.uk/build-on-the-positives/:mad::wtf::thumbsdown:
  8. Suffolkres

    United Kingdom: Sussex & Kent ME/CFS Society News

    https://int.sussex.ics.nhs.uk/wp-content/uploads/2022/11/SCFTGPWebinar2022-Read-Only-Compatibility-Mode.pdf
  9. Suffolkres

    United Kingdom: Sussex & Kent ME/CFS Society News

    https://www.sussexcommunity.nhs.uk/patients-and-visitors/services/myalgic-encephalomyelitis-me-and-chronic-fatigue-service-cfs Mild and moderate over 16.....
  10. Suffolkres

    United Kingdom: Sussex & Kent ME/CFS Society News

    Hum, our Specialist Clinic in 2014 was running at 1,400 referrals a year! In earlier days, 2006, Dr Mitchell focused on the severely affected, which amounted to about 1/3 of referrals. Referral rate then was 300-400 per year, so approx 100 patients and domiciliary support home visits were...
  11. Suffolkres

    United Kingdom: Sussex & Kent ME/CFS Society News

    Colin Imega.... What a farce that became..... I remember the APPG (2005) with Colin doing his stuff.....
  12. Suffolkres

    UK BACME ME/CFS Guide to Therapy 2025

    Oh, I'm bit slow... EROS.... Tried GPChat.... Freud?.Jung... So I put in EROS +Bullshit...? Answer was, 'It sounds like something I said hit the wrong note — thanks for letting me know. Tell me what you actually wanted when you wrote “EROS” and I’ll give you a straight, no-nonsense answer.'
  13. Suffolkres

    The HERITAGE study (Health Effects fRom Infection sequelae: Tailoring services and Advancing GuidancE)

    Formal complaint gone on today on the back of patient exclusion Feb 2025..... And ot wasn't just digital exclusion!
  14. Suffolkres

    UK BACME ME/CFS Guide to Therapy 2025

    This BACME Guide (and liaison between BACME MEA and others like Eleros and Tyson) biggest problem and achiles heel, is the lack of co production, surely? This needs also raising as S4ME have tried to 'engage' inform and provide constructive comment and concerns. Not even Engagement has been...
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