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Just contacted KMICB about how this tender came about! It appears that Delivery manager left as of 2nd January 2026.....

You would be surprised how the good people are kept in the dark until final hour procurement Tendering hits! There would have been an Expression of Interest exercise during Autumn I suspect..?

I know but it's a separate ICB

London School of Hygiene and Tropical Medicine ME Biobank CureME Lead Dr Luis Nacul, Dr Eluana Lacerda and Caroline Kingdon

Let's hope someone decent will bid .... As people know. Not a lot of choice. Maybe LSHTM might be interested...

Budget over 9 million for 5 years The combined population of Kent (excluding Medway) and Medway is around 1.9 million, with Kent County Council's area having roughly 1.61 million (as of recent estimates) and Medway adding about 280,000 (2021 Census/2022 data), totaling over 1.89 million...

As you might expect, us Suffolk folk and the wonderful ME Local Network are appraised of this....... It was highlighted and interrogated 9. 30 am. Especially as having signed up to look at Spec and Pathway...... We find our own Suffolk drafts ( from 2025!).... A new set of Commissioning...

I dread to think....

'Isn't it A SHAME THAT NO ONE DID NOTHING ???' Slightly confused. Double negative, n'est pas?! Do you mean someone did something ...???? As for me, re. any comments? Professionally, I am not a scientist nor a medic. I worked in Specialist education and am a carer for 2 with ME diagnosis. IN...

Thank you for this measured necessary response Trish..especially today!

Haa anyone any ball park figure for rhe costs? Programme, advice, products please? Just interested as against Lightening, etc etc? Just being nosy actually.

Please this field will be ripe for AI intervention and approaches, another of Joshua's preferred methodologies, and now enshrined within the UK 10 year NHS plan. Be wary what you wish for.....

Just played catch up, at least tried to, with the Whitney, Born Free Protocol, Joshua threads OMF, Janet and Ron. All very intense and full of concern and conviction. So I am immensely grateful to S4ME for holding and making available this record. It reminds me of the furore over the other...

D from Suffolk had her medical diagnosis and needs run by Prof PW as he was medical advisor for Scottish Provident PPI insurers (and later, re insurers Swiss Re) back around that time. This record, secured at the time, was vital for David Tuller's subsequent investigation and scrutiny of...

Absolutely....

Re, 'They are employing staff to advise Integrated Care Boards on provision of local services, but I haven't seen anything published about what advice they are providing.' The MEA were invited to help shape our Coproduction in 2022 when the ICB committed ti enshrine ME within their 5 year...

Am old enough to remember 3 named above with distaste....and dismay.

Ah....IOM and MEA.... Sounding very familiar... We did look at IOM coproduction of their service around 2022, but what we found provided more questions than answers..... Recent developments at IOM suggest our resistance was not unfounded.

Like to know what the game plan is...? I bet RF was less than easy which is why he was vaping through it.. dreadful!

Don't do children, yet to do SAs..... I asked for more detail on how SAs were included. Worries seem to be LC gravy train is/ has dried up! LC Tyson feels is almost same as ME...So, hey, App is transferable.. So let's do ME (milds and moderate) They yet have to get to grips with related...