Search results

  1. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    The service will cover the Suffolk and North East Essex locality. two.2.4) Description of the procurementII.2.4) Description of the procurement The NHS Suffolk and North East Essex Integrated Care Board are issuing Procurement Documentation in connection with the competitive procurement of the...
  2. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    She behaved like that because she was caught out over governance... She has been in post and I have had dealing with her directly and indirectly for 22 years..... She's run ragged, asleep on the watch and has been 'misinformed' by her staff...... Thus due diligence has been absent!
  3. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Thanks... I know it seemed an eternity!:(
  4. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    No any provider anywhere can EOI. (Community Interest Companies etc , Charities in theory if they have the bandwidth. Foundation Trusts... It's full procurement process under new rules open to all due to 'value ' approach £5.5 million over 5 years, initially for 3 years.
  5. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    A personal aside! I am suffering this faulure of processes with neighbour over his adjacent development! 2019 to present. It has rendered my property unviable until resolved. It's cost thousands in solicitors fees as authorities won't do their job. It's driven me to breaking point, family...
  6. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    It would have made no difference if you had. In the September public meeting, it was claimed that previous Transformation and Coproduction agreements and consensus work was 'ceased'.... And things had, 'moved on' to 'another level'... To put it bluntly, it was in effect a 'Dear John'. P*ss off...
  7. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    https://bidstats.uk/tenders/2025/W05/839582148
  8. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Yes to 'someone/something’ has come in and reset everything back to what they insist on/the generic ie what you had all the discussions to move things on from ?' Yes to 'any clue of where it’s getting blocked...... (and why) and yes as to 'where the ‘issues’ are coming from?'..... Please DM me...
  9. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    August Complaint September ICB Board My challenge https://www.youtube.com/live/MglnK5HFrIk?feature=shared 3hours 56 minutes in
  10. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    https://www.youtube.com/live/Hqo9u478XoY?feature=shared My request for Addendum, 2 hrs 57 mins in.
  11. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Please apply to see documentation, specification which was finalised without us seeing any of it. As soon as I can secure it, I will compare and contrast with the draft version we were still negotiating on. I have version 14 draft with track changes .....
  12. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    As someone with involvement with this, we are collectively deeply unhappy about the proceedings and handling of coproduction over the last 6 months. As a result of our collective unease, since August, formal complaints have been issued to the ICB. I also attended the ICB Board meeting this...
  13. Suffolkres

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Merged Suffolk and North East Essex Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and Long Covid Service A Tender Notice by NHS SUFFOLK AND NORTH EAST ESSEX ICB https://bidstats.uk/tenders/2025/W05/839582148
  14. Suffolkres

    How can we improve the quality of ME/CFS research and clinical care?

    How right you are....... but, one way to counter that, is to try to get someone heading leading the new service *( if we can.....) to counter that threat, as they might have better credentials and a higher research background and authority!!?? We know what we want, but cannot magic suitable...
  15. Suffolkres

    How can we improve the quality of ME/CFS research and clinical care?

    In part, our drive locally and need was to counter an early 2022 Public Health, 'Knowledge and Intelligence' Topic paper, issued after commissioning by our erstwhile Medical Director, a neurologist.... without our involvement........ He, MD. a subscriber of MUS, FND Dissociative Disorder who...
  16. Suffolkres

    How can we improve the quality of ME/CFS research and clinical care?

    I am wondering if our continuing efforts towards a co-produced, patient centred ME, CFS, & Long Covid Specialised Service might provide a small experimental way? Suffolk and NE Essex ICB area. SNEEICS. We have asked for the 'right sort' of Service 'Clinical Medical' Lead to also have a...
  17. Suffolkres

    Declaration of Helsinki embraces health equity, 2024, Nature Medicine editorial

    1.'Did the Let's Talk SNEE website work to facilitate the Quality Advisory Group?' A. In effect, yes, but without that label, but as part of the Terms of Reference and 'Task Finish Group.' 2022-July 2024. BUT, they, 'new service Development Team' as of October 2024. ....suggested that was...
  18. Suffolkres

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Might be worth checking this out ..Faculty of Occupational Health...? Get Britain Working' White Paper The Government’s ‘Get Britain Working’ White Paper has been published and comes as stark figures show almost one and a half million people are unemployed, over nine million people are inactive...
Back
Top Bottom