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Can someone please diagnose Wyller, Wessely and Sharpe with schizophrenia? They can't seem to decide whether ME/CFS patients are a) Ambitious overachievers who push themselves too hard b) Lazy deconditioned patients who are afraid of overexertion The poorly conducted studies by these...

Yeah it's sort of odd... Last time I felt like they should have extended their crowdfunding, because they could easily have been able to raise more money. Maybe it is to create a sense of urgency to get people to donate?

You know ME/CFS is starting to be in a better spot when there is too much stuff for you to be able to donate to. Will definitely be doing what I can to donate to this though. Although I don't always agree with everything JB says, there is no denying that she is an excellent advocate for this...

Now we just need CBT and GET to be classified as alternative treatment ;) Might as well be describing CBT and GET to be honest :P

This is what is happening with new forms of CBT and GET being applied in Scandinavia. Especially in Denmark with 'Funktionelle lidelser', the CBT in question is so impotent that there is no way it will ever be able to harm patients. The researches then use this as ''evidence'' that CBT and GET...

I have had to read a lot of BPS rubbish these two past years. But this tweet really takes the cake when it comes to idiocy. It's no longer a mystery to me how these people end up with such insane theories. What is one to expect when these clowns are not even able to distinguish between...

Oh boi... This sounds exactly like the Danish approach to ME/CFS with 'funktionelle lidelser'..... It's so infuriating not being able to do something about it... The entire BPS idea is so obviously stupid. If only I had had my health of 6-10 years ago... but alas.. Didn't even know I had ME/CFS...

Really? Why are some people negatively inclined towards SMCI? Personally think they are doing great :)!

Oh boi. Just looked at the first draft for the Danish funktionelle lidelser, which covers ME/CFS. They are worse than I had ever imagined...

Thanks for this! I have always enjoyed medicinal history, it's incredibly exciting. Sadly I hardly ever read anymore because of the strain reading has on me, but will definitely remember this. Maybe a good idea for a birthday / Christmas present as well :)!

Hey everyone! The Facebook group can be found Hope to see some of you there :)!

Just waiting for his next tweet where he comments on a story of a girl being raped by ''It is important to underscore that the girl could have worn more clothes'' This guy is clearly a sociopath.

Just want to thank you for everything you have done! Will definitely hassle my parents for some money to donate :)!!

Going to be honest. Pretty disappointed with the outcome. The Dutch situation is eerily similar to the one in Denmark. In the Netherlands you have 'SOLK'. In Denmark you have the 'functionelle lidelser' or 'Bodily Distress Syndrome'. Recently in Denmark the organisation of health authority and...

Havn't been this excited for ME/CFS news in a while! Fingers crossed.

And if you had made this list half a year ago Rituximab would have been on the list. There is absolutely not enough evidence at this moment to conclude that any of these provide an effective treatment of ME/CFS.

The same thing happens in Denmark. Patients talking about effective treatment available in countries from everywhere from Belgium to Poland.. Like ehm.. What effective treatment? I mean I hate to be a negative nancy, but the truth is that the ME/CFS situation is borderline catastrophical in...

I agree. I really don't think they get the credit they deserve in the ME/CFS community.

Couldn't agree more.

Yeah. I can't remember whether it was the CBT or GET manual or if it was both. But I remember reading that telling patients about the effectiveness / scientific evidence behind the therapy was absolutely essential for the treatment. Manual also stated importance of patients being told to...