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  1. Rick Sanchez

    Criticism of PACE trial from Daniël Lakens

    This is absurd. So to rationalize that there was not any bias, Olaf Dekkers, actually makes the assumption that many patients willingly enrolled in PACE back in 2005 despite being against CBT? Is this what the defense of PACE has come to? Isn't it obvious that a study is garbage if you have to...
  2. Rick Sanchez

    Chapter in The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition

    I actually feel really good about this. The recent years have been full of intellectual dishonesty from all the BPS proponents. I feel like this is one of the only times in recent memory where I have actually seen someone, in this case Sharpe, be brutally honest about the BPS view of ME/CFS. I...
  3. Rick Sanchez

    Millions suffer from an invisible disease: My ME/CFS story - Ryan Prior

    Ditto! He seemed to have started the treatment one and a half year after getting ME/CFS. So might just have been pure chance that he went into remission ''shortly'' after a suden-onset. Since consensus among most ME/CFS experts still seems to be that there is little to no evidence of anything...
  4. Rick Sanchez

    News from Scandinavia

    Ola is such a hero. Still think it's odd that no major Danish news outlet has picked up on the Marie Louise-case. What has happened so far is just bizarre. But then again even the Karina-case had very little mainstream news coverage in DK.
  5. Rick Sanchez

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    The complaint is not that subjective measures are unreliable per se, but that the combination of subjective measures and an unblinded trial are problematic. Regarding significant improvement in PACE. The general improvement in the PACE trial for CBT / GET compared to the other arms was...
  6. Rick Sanchez

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Could you please elaborate what you mean by ''actual improvements'', and how these occurred in PACE?
  7. Rick Sanchez

    Columbia University: Insights from Metabolites Get Us Closer to a Test for Chronic Fatigue Syndrome

    Very interesting read!! Isn't a .836 predictive score pretty decent considering that ME/CFS is believed to include a heterogeneous group of patiens?
  8. Rick Sanchez

    News from Scandinavia

    The Danish Health Authority is officially crazy... I'm so angry It's actually so insane to see The Danish Health Authority support this functional disorder nonsense. This bit is particularly bizarre. So we are to understand that the Danish Health Authority is working on getting the...
  9. Rick Sanchez

    Breakthrough in Gulf War illnesses from exposure to chemical toxins

    Think some of you might enjoy this interview with Nancy Klimas if you have not seen it already. Similarities between GWI and ME/CFS are interesting.
  10. Rick Sanchez

    Member comments wanted: Second section (Who the guideline is for) of the NICE ME/CFS guidelines draft scope

    I agree with everything Edwards has said. 1) Don't complicate the simple. Keep the fight on CBT and GET. 2) I think the entire debate regarding whether some forms of CBT and GET can help some patients who suffer from fatigue is a huge mistake. I think Norway is a good example, where there has...
  11. Rick Sanchez

    David Tuller: Trial by Error: My exchange with Professor Bishop

    Maybe I am being hopelessly naive for asking this. But is there a chance that some of the CBT proponents who support LP don't even know how the LP actually functions? It honestly wasn't until the Buzzfeed article last year that I found out just how crazy the LP actually was. I thought it was...
  12. Rick Sanchez

    Danish recommendations on 'Funktionelle lidelser'

    Thanks a bunch for the work!! I would direct the letters to Tina Gustavsen who is press secretary of the Danish Health Authority (https://twitter.com/guldmann) or Søren Brostrøm who is Director of The Danish Health Authority (https://twitter.com/sstbrostrom?lang=en) Not sure what their emails...
  13. Rick Sanchez

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Agent Sharpe is becoming an important ally I see!! Who is going to set up the indiegogo campaign for him to continue his current work on dismantling the psycho-babble madhouse from within?
  14. Rick Sanchez

    News from Scandinavia

    Interview with The Danish Health Authority on 'functional disorders' and their newly released recommendations! TOO MUCH FOCUS ON DIAGNOSIS https://politiken.dk/forbrugogliv/sundhedogmotion/art6590941/»Drop-kampen-om-diagnoser-fokuser-på-bedre-hjælp« Translated version...
  15. Rick Sanchez

    News from Scandinavia

    Radio interview on Denmarks Radio about 'funktionelle lidelser' basically one long propoganda piece for Fink. https://www.dr.dk/radio/p4nord/p4nord-morgen/p4-morgen-2018-06-18 Another piece of garbage by DR...
  16. Rick Sanchez

    News from Scandinavia

    If anyone has the time / effort try to engage in this thread. Scandinavians as well as English speaking folks are welcome. The most important part is that we make it clear that Denmark is often considered one of the worst places to be a ME/CFS patient. Søren Brostrøms twitter thread is the...
  17. Rick Sanchez

    Danish recommendations on 'Funktionelle lidelser'

    Thank you so much :)! I feel like the translator generally does a pretty good job, so I feel like you are able to get the gist of the entire thing by using the translator.
  18. Rick Sanchez

    Danish recommendations on 'Funktionelle lidelser'

    The recommendations for Danish ‘funktionelle lidelser’ in English called 'functional disorders' were released today, monday the 18th of june. Available @ https://www.sst.dk/da/nyheder/2018/~/media/15C564788C0B445682C87695A2AFF6CD.ashx The recommendations are so terrible that I believe they...
  19. Rick Sanchez

    News from Scandinavia

    First article out regarding the still unreleased recommendations. https://politiken.dk/forbrugogliv/sundhedogmotion/art6589398/Bedre-hjælp-på-vej-til-folk-med-lidelser-lægerne-ikke-forstår Igum, the journalist behind the article is a great guy who has basically been behind the vast majority of...
  20. Rick Sanchez

    News from Scandinavia

    Recommendations by Danish Health Authorities out for the Danish 'funktionelle lidelser' tomorrow, which will include recommendations for ME/CFS, since it falls under the Danish 'funktionelle lidelser'. Notable members of the committee are Per Fink and Lisbeth Frostholm. There will also be...
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