This is absurd.
So to rationalize that there was not any bias, Olaf Dekkers, actually makes the assumption that many patients willingly enrolled in PACE back in 2005 despite being against CBT? Is this what the defense of PACE has come to? Isn't it obvious that a study is garbage if you have to...
I actually feel really good about this.
The recent years have been full of intellectual dishonesty from all the BPS proponents. I feel like this is one of the only times in recent memory where I have actually seen someone, in this case Sharpe, be brutally honest about the BPS view of ME/CFS. I...
Ditto!
He seemed to have started the treatment one and a half year after getting ME/CFS. So might just have been pure chance that he went into remission ''shortly'' after a suden-onset. Since consensus among most ME/CFS experts still seems to be that there is little to no evidence of anything...
Ola is such a hero.
Still think it's odd that no major Danish news outlet has picked up on the Marie Louise-case. What has happened so far is just bizarre. But then again even the Karina-case had very little mainstream news coverage in DK.
The complaint is not that subjective measures are unreliable per se, but that the combination of subjective measures and an unblinded trial are problematic.
Regarding significant improvement in PACE. The general improvement in the PACE trial for CBT / GET compared to the other arms was...
The Danish Health Authority is officially crazy...
I'm so angry
It's actually so insane to see The Danish Health Authority support this functional disorder nonsense.
This bit is particularly bizarre.
So we are to understand that the Danish Health Authority is working on getting the...
I agree with everything Edwards has said.
1) Don't complicate the simple. Keep the fight on CBT and GET.
2) I think the entire debate regarding whether some forms of CBT and GET can help some patients who suffer from fatigue is a huge mistake. I think Norway is a good example, where there has...
Maybe I am being hopelessly naive for asking this.
But is there a chance that some of the CBT proponents who support LP don't even know how the LP actually functions?
It honestly wasn't until the Buzzfeed article last year that I found out just how crazy the LP actually was. I thought it was...
Thanks a bunch for the work!!
I would direct the letters to Tina Gustavsen who is press secretary of the Danish Health Authority (https://twitter.com/guldmann) or Søren Brostrøm who is Director of The Danish Health Authority (https://twitter.com/sstbrostrom?lang=en)
Not sure what their emails...
Agent Sharpe is becoming an important ally I see!! Who is going to set up the indiegogo campaign for him to continue his current work on dismantling the psycho-babble madhouse from within?
Interview with The Danish Health Authority on 'functional disorders' and their newly released recommendations!
TOO MUCH FOCUS ON DIAGNOSIS
https://politiken.dk/forbrugogliv/sundhedogmotion/art6590941/»Drop-kampen-om-diagnoser-fokuser-på-bedre-hjælp«
Translated version...
Radio interview on Denmarks Radio about 'funktionelle lidelser' basically one long propoganda piece for Fink.
https://www.dr.dk/radio/p4nord/p4nord-morgen/p4-morgen-2018-06-18
Another piece of garbage by DR...
If anyone has the time / effort try to engage in this thread. Scandinavians as well as English speaking folks are welcome. The most important part is that we make it clear that Denmark is often considered one of the worst places to be a ME/CFS patient.
Søren Brostrøms twitter thread is the...
Thank you so much :)! I feel like the translator generally does a pretty good job, so I feel like you are able to get the gist of the entire thing by using the translator.
The recommendations for Danish ‘funktionelle lidelser’ in English called 'functional disorders' were released today, monday the 18th of june.
Available @
https://www.sst.dk/da/nyheder/2018/~/media/15C564788C0B445682C87695A2AFF6CD.ashx
The recommendations are so terrible that I believe they...
First article out regarding the still unreleased recommendations.
https://politiken.dk/forbrugogliv/sundhedogmotion/art6589398/Bedre-hjælp-på-vej-til-folk-med-lidelser-lægerne-ikke-forstår
Igum, the journalist behind the article is a great guy who has basically been behind the vast majority of...
Recommendations by Danish Health Authorities out for the Danish 'funktionelle lidelser' tomorrow, which will include recommendations for ME/CFS, since it falls under the Danish 'funktionelle lidelser'.
Notable members of the committee are Per Fink and Lisbeth Frostholm.
There will also be...
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