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I've heard of multiple studies / PhDs about ME/CFS that have been going under the radar. Being able to benefit from the exponential growth of new knowledge and technology in the field of Medicine is definitely benefiting us. Things are definitely looking brighter.

To the people living in Germany, what is your take on Deutsche Gesellschaft für ME/CFS? From an outside perspective it looks like they have been doing a very good job, but would love to hear how people in Germany view them!

Feel kinda stupid now. I think your post hit the nail on the head.

I don't get it either... It's clear that the replication crisis is gaining traction at the moment. If I were them I would stay low as much as possible. Instead they are painting a giant bullseye on their research for those who are being very critical of the poor science behind mindfulness / CBT...

It was a good read. I'm always very pleased when someone is just completely honest.

How awful. Embarrassed to admit that I never realized she had ME/CFS for some reason. Makes all the work she has done for Solve even more impressive. I truly wish her all the best, and am incredibly thankful for all the work she has done. Solve has been one of my fav ME/CFS charities the past...

This explanation makes ZERO sense. Like, what on earth does this even mean?

My rough interpretation / translation David Tovey states that the Cochrane leadership in a highly unusual move, publicly stated that it intended to retract the GET review. It ended up deciding against the unheard of decision, because a new review was being conducted. According to Tovey the...

Exactly. Apparently the idea that the precautionary principle could apply to exercise studies has completely eluded Søren Brostrøm and the rest of the Danish Health Authority.

So we were right all along. Sharpe was intentionally trolling patients on Twitter to try and make a case for himself as a victim of online ''abuse''

I agree completely. I always feel so awful with all the focus on ME/CFS, because Fibro deserves focus / research just as much. Hopefully this will bring better things for all patients in Denmark.

Rumors say the Danish Health Authority will be launching a counter offensive tomorrow. I expect things to get pretty ugly. Don't think anyone was actually expecting this much progress to be made, and now the entire functional disorder approach is in danger. After all what's the point in having...

Argh! Must have missed it, been so super tired! Will check it out :)!

There's been a lot of amazing ME/CFS coverage in Denmark for the past few days. I feel like it deserves a thread of its own. But I don't have the energy. It's about the ME/CFS debate in Danish parliament. The Danish 'ME-Forening' and the Ilsøe family have been doing an incredible job. Sadly...

A lot of Danish patients think that treatment is available abroad, or that the situation is significantly better in other countries like Norway. Which sadly, as we all know isn't the case. It's very unfortunate and does not help the cause.

This entire thing is so bizarre.... and so terribly embarrassing. I mean, what does he even hope to achieve with this letter to the editor? Has the criticism really become so bad that he seeks validation from the ''international'' community of British, Dutch and Norwegian psychologists and...

Director of Danish Health Authority Søren Brostrøm Letter to the Editor Journal of Psychosomatic Research Topic is regarding the Danish approach to 'functional disorders' in Denmark which includes ME/CFS. Available @ https://www.sciencedirect.com/science/article/pii/S0022399918309498?via=ihub...

Finally found this thread! Not sure if this is possible / ethical or whatever. But I would like to see a study with 3 different groups. A group of people with short term ME/CFS (who have had the illness less than 3 years) A group with long-term ME/CFS (longer than 3 years) A control group of...

Don't think there was any coverage, I personally didn't hear anything about this :/. Really wish I had.

A study on whether teenagers have mood problems? Would be like studying whether monkeys have tails.