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A useful phrase!

What??? Surely that would introduce bias and invalidate much of the trial!

Yes - but was it controlled? The trial had 4 treatment arms to compare (as MS pointed out earlier to someone on Twitter, IIRC) and no 'do nothing' control group. Also, from the ABC interview soon after PACE was published...

Shocking and thank you for posting it (hopefully one for @Jonathan Edwards notebook?). The message of it, as I read it: 1. Nothing to address the actual paper. 2. Irrelevant questioning of the three authors' diagnosis and motives. 3. The reviewer having a need to proclaim why he/she is so great.

Or maybe MS thinks he is untouchable.

What was Rosindells's function today?

Stephen Brine's, the minister's (Parliamentary Under-Secretary of State for Health), pre-politics career according to Wikipedia includes no medical or science background: https://en.wikipedia.org/wiki/Steve_Brine

The thing is: ME sufferers (and their supporters) are sending a strong positive message. The message is of courage in the face of adversity and persistently trying to get better treatment while being very ill and often maligned. Thank you @Keela Too for all your work and @large donner for such...

She was so knowledgeable. I have been often told that the situation around ME is so complex, a lot of people will not understand (or will not be interested because it is not a simple straight-forward situation) or they switch off when I try to explain the situation (even if they wanted to know)...

Yes, the usual blah blah told in a charming manner.

I have been told a variation of that too.

OK, thank you.

Thinking about the 'unbecoming-gate', I also detect a little bit of misogynistic undertones. I don't think that word is commonly used with men.

Exactly. And a quotable quote for ME sufferers to demonstrate how we and our supporters are treated by some.

Absolutely and you articulated it very well. Likes x 1000

The signatories of the letter are from 6 countries (all but 1 English speaking). I wonder if in future, it would have more weight to have signatories from more countries, to show how much interest there is.

Previous videos @Graham has made are excellent too.

That's my theory too.

I don't have internal tremors but when I overdo things, my body shakes as if it was cold (it is not). At the same time, I usually feel sick in my stomach and have to empty myself quickly (diarrhoea) (sorry for TMI). My fever goes up to 37.3-37.5 degrees Celsius. It is almost like my body runs...

This is not meant to be political thread - I am simply posting information to be aware of. Someone sent me this article analysing current relevant law, detailing that future residence and other rights in the UK may not be the same as now for disabled EU citizens (and their carers) and they may...