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Ah right, OK, thanks. That would make sense.

Thanks, Trish. I meant to say: Ethan has heard that Paul Grant is doing something for the BBC on the LP and Long Covid and is looking for patients with experience of it, so if anyone knows anyone? I presume it's this guy https://x.com/paul_grant1?lang=en-GB

I reached out to Ethan on Twitter yesterday and made some points about the article. He assured me it was a genuine attempt to be balanced and I absolutely accept that. He was very open to feedback (mine is here, for anyone interested, https://justpaste.it/ckqmc written in a bit of a hurry so...

A few more now, including from Dr Richard Rawlins saying he'll take up the NHS Glasgow pilot study.

Good blog post by Edzard Ernst in response. https://edzardernst.com/2024/05/almost-anyone-can-recover-from-long-covid-just-pay-a-lot-of-money-for-the-lightning-process-no-please-dont-i-was-joking/ 'Let me try to summarise: The LP is promoted as a cure for long-Covid. There is no evidence that...

Thanks, Hutan.

OK, thanks, Trish. I haven't been up to listening to it or reading properly the comments here.

I didn't know about that. Could someone give me details please?

DWP's own figures show there is no disability benefit benefits fraud. https://www.bigissue.com/news/social-justice/dwp-disability-benefit-fraud-pip/

OK. Maybe it's because the only link I have is the paywalled one as my browser automatically logs me in or something. Maybe someone else can do it.

OK. My fault, I think. Does this work? /web/20240518114727/https://www.thetimes.co.uk/article/four-of-us-made-a-pact-to-find-out-what-went-wrong-the-other-three-died-dsvf060fs

Try this. https://t.co/qEmCoNbT1E

Merged thread Woman with infected blood told for decades she was hypochondriac, Times (UK), May/2024 ‘Four of us were infected blood victims — I’m the only one still alive’ Kaya Burgess The Times (of London) 17/05/2024...

Taboos and Self-Censorship Among U.S. Psychology Professors Cory J. Clark, Matias Fjeldmark, Louise Lu, Roy F. Baumeister, Stephen Ceci, Komi Frey, Geoffrey Miller, Wilfred Reilly, Dianne Tice, William von Hippel, Wendy M. Williams, Bo M. Winegard, and Philip E. Tetlock Abstract We identify...

It is good. Transcript attached if anyone prefers.

I have a second account in another browser. It's sort of 'clean' as I don't follow anyone and don't post anything with it.

I'm not sure if this has been posted somewhere already, but if not I suppose this could count as 'PACE trial - Where are they now?' Emeritus Professor of Psychological Medicine at the University of Oxford Michael Sharpe has now started a consultancy making available to others (for a fee, of...

Thanks. That's the Telegraph one, which has a different mention of ME. She had to wait a long time before anyone gave her condition a name – myalgic encephalopathy (ME), now usually referred to as Chronic Fatigue Syndrome. For the rest of her life it would force her to spend three months of...

Obituary of Shirley Conran in Times today. (Paywalled) https://www.thetimes.co.uk/article/dame-shirley-conran-obituary-bestselling-author-and-pioneer-of-journalism-for-women-tt3kjgcm6 Dame Shirley Conran, journalist and novelist, was born on September 21, 1932. She died on May 9, 2024, aged 91...

People with ME have been ignored for far too long Sajid Javid The Times (London) 10/05/2024 A once active, happy person, full of life, is now bedridden, too exhausted to eat and barely able to speak. What happens when you have a disease doctors can’t diagnose? Many with myalgic...