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  1. J

    The Times (London): Michael Vaughan: Stress of racism claims made me fear I had Parkinson’s, 2024

    Original Telegraph article Michael Vaughan: If I had gone through this racism ordeal at 80, I would have wanted to be shot Exclusive interview: Former England captain reveals that Azeem Rafiq case took such a toll that he could not perform basic tasks By Oliver Brown...
  2. J

    The Times (London): Michael Vaughan: Stress of racism claims made me fear I had Parkinson’s, 2024

    Michael Vaughan: Stress of racism claims made me fear I had Parkinson’s Former England captain reveals the ordeal of proving his innocence in Azeem Rafiq case caused inflammatory illness that left him ‘barely able to cross the road’...
  3. J

    United Kingdom: Science Media Centre (including Fiona Fox)

    Just looking at this thread and wanted to read the factsheet, but the link is now dead. Would anyone by any chance be able to help with a PDF? Thanks.
  4. J

    BBC journalist has reached out asking for more info on ME patient abuse claims

    I have been skimming this document the last couple of days. The quotations are from official reports so I would download the reports (if possible) and any other sources used, check the quotations and if they stand up, send the Williams document and all the other sources. To be honest, I find...
  5. J

    Esther Crawley

    I agree with Trish. I think a certain caution is advisable.
  6. J

    BBC: How Long Concussion could offer new insights into Long Covid

    I've said before that I've long thought my symptoms resemble those with concussion and CTE. Since we're on this subject: article in Times (London) today on how research showing that even heading modern balls increased risk of CTE in former footballers was repressed by BMJ and the (now proven)...
  7. J

    'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths]

    I think this study inadvertently raises a question they have never been able to answer and one I have thought about for some time. It used to be estimated that at any one time 100K people in the UK alone had ME. The figure used more often now is 250K. Over the last 30 years, millions throughout...
  8. J

    Standards for randomized controlled trials of efficacy of psychological treatments, 2024, Mohr

    Standards for randomized controlled trials of efficacy of psychological treatments David Mohr In summary, well-controlled RCTs of psychological interventions are necessary for the protection of all stakeholders, including patients, from ineffective treatments. Considerations unique to RCTs for...
  9. J

    UK: Walk for ME

    Good stuff, thanks, Ian. Sorry to hear your mother isn't well. Hope she improves soon.
  10. J

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    I think this is poorly worded and doesn't explain what I mean. I would say instead: I'm not actually saying it does, just that it's possible that the proponents were seeing this type of patient in their clinics and these patients improved and so they convinced themselves that they had an...
  11. J

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    Yes, but this is part of the disconnect. They were seeing one group of patients convinced they were seeing another. And the giveaway is when they create the Oxford criteria. That must have come from the clinics. It must have been what they were using to diagnose patients with 'CFS'. And right...
  12. J

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    Yes, but that's just noise from badly designed trials, the inevitable, small, subjective improvement in some patients that is going to occur using subjective measures in an unblinded trial. I'm not sure that's true. Wessely's one and only trial (direct to PDF) for instance used Oxford criteria...
  13. J

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    OK, but if we accept some patients may need to rationalize their improvement or decide they no longer want to malinger or have had enough of malingering for now or actually quite liked the chat and think they'd rather like to get on with things a bit more now or whatever, then that would still...
  14. J

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    Or is it rather that they generally get excluded from such trials? We know 40% of patients at an ME clinic did not turn out to have 'CFS' (direct link to PDF). Over one thousand patients were excluded from the original 3,000+ at clinics for PACE. And does that perhaps explain in part why so...
  15. J

    Functional Neurological Disorders: Challenging the Mainstream Agnostic Causative Position 2024 Scamvougeras and Castle

    It seems I take a slightly different view from others. I think that some patients diagnosed with ME and long Covid are in fact struggling with their mental health (note: mental health, not mental illness) and benefit from therapy. It may be that Paul Garner was one of them. I also think that a...
  16. J

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    Extraordinary really. I've seen her bio in various places which confirms she is into NLP, but do you have something saying she is an LP practitioner?
  17. J

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    The question of balance has been debated a bit in the UK over the last 20 years or so. There was quite a lot of criticism of the BBC in particular and the media in general for false equivalence in coverage of climate change. It was pointed out that by attempting to give equal billing in every...
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