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  1. J

    Article by Paul Worthley

    Hehe. Brilliant.
  2. J

    Article by Paul Worthley

    Yes, that's right. I hate the deceit: 'Yes, your illness is real.' But then we think hysteria is a real illness. 'Yes, it's triggered by a virus.' And by 'trauma' and anything else come to think of it. 'Yes, it's physical and there are physiological changes.' But we're not dualists and...
  3. J

    Article by Paul Worthley

    This was apparently in the @Action for M.E. journal earlier this year. https://www.metrust.org.uk/2018/07/06/article-by-dr-paul-worthley-in-interaction-magazine/ I don't know anything about Worthley or the ME Trust, though I see Countess of Mar is a Patron. It reads to me as very similar to...
  4. J

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    I don't. As discussed elsewhere, I am not alone in thinking ME is likely more than one illness. I can only then speak for myself, but 'homeostasis out of control' means absolutely nothing to me. The whole article, to me, is utter gibberish.
  5. J

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    I have hacked my way though this turgid nonsense. It is quite extraordinarily awful. It reminds me of two things: one is an explanation of acupuncture I once read; the other is the film Europa Europa (1990) and the explanation for racial superiority. Have a false idea and then build a complex...
  6. J

    The Importance of Screening for Suicide Risk in Chronic Invisible Illness (2018)  Pederson

    Think this paper gives a good description of the experience of being chronically ill. https://www.researchgate.net/publication/325976771_The_Importance_of_Screening_for_Suicide_Risk_in_Chronic_Invisible_Illness
  7. J

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    I was poking around on the Bristol Uni site today and noticed that they're flogging Fitnet with Crawley's TEDx talk. https://www.bristol.ac.uk/ccah/research/childdevelopmentdisability/chronic-fatigue/fitnet-nhs/faq/
  8. J

    BBC News: MP Carol Monaghan leads campaign for new ME treatment

    Strudwick was 'cured of ME' by the LP and wrote an awful, damaging article in The Times about it. He's not an ally. https://www.thetimes.co.uk/article/me-lightning-cure-or-a-flash-in-the-pan-87cq3kktkwn
  9. J

    Resistance To Science and Technology by Julian Vigo (Forbes.com)

    Oh, I thought that all sounded very familiar. She'd a 'Spiked' bully. Yawn. It could have been written by Fox. Oh, maybe it was. http://www.spiked-online.com/newsite/author/Julian%20Vigo
  10. J

    Video: The PACE trial: a short explanation, Graham McPhee

    He was Anthony Johnson. I don't think he disappeared. He did leave the MRC in 2014. As 'only the statistician' it's true he wouldn't normally be expected to be involved with the publicity surrounding the paper. However, since he was the statistician and so much criticism has centred on the...
  11. J

    Video: The PACE trial: a short explanation, Graham McPhee

    It's up to you. I can only say that I didn't see it how you describe. It is great work, Graham. I am being hypercritical after you done so much
  12. J

    Video: The PACE trial: a short explanation, Graham McPhee

    No, Wessely wasn't on any of the trial committees. I think this idea of getting the evidence to fit their expectations is absolutely right. They started the whole process as we saw from their application to the MRC with certain results in mind. Hey presto, what did their (amended) analysis...
  13. J

    Video: The PACE trial: a short explanation, Graham McPhee

    That raises the question about how well briefed they were on the TSC and DMEC when they agreed to the changes to the protocol, and the minutes suggest they were not at all briefed.
  14. J

    Video: The PACE trial: a short explanation, Graham McPhee

    I think, though, @Graham it needs to be consistent. You point at the mark after 65 for 65, but before 60 and before 85 for those numbers. They should all either be pointing before or after. Great job again, though, thanks.
  15. J

    Michael Sharpe skewered by @JohntheJack on Twitter

    Oh, that's interesting: he does show in the Twitter thread on here, but not for me in the browser.
  16. J

    Michael Sharpe skewered by @JohntheJack on Twitter

    I posted a link to him yesterday. He's not showing in the thread now of course because I am blocked. His retweets this morning are interesting. And Wonder if they'll be discussing PACE.
  17. J

    Michael Sharpe skewered by @JohntheJack on Twitter

    Hehe. Yeah, I'm distraught.
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