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  1. J

    ME mentioned in Sunday Times (UK) article about BBC presenter Kirsty Young's fibromyalgia

    It shows, I think, how these illnesses are generally understood, and also how the majority of people are absolutely convinced about the psychological factor in illnesses. 'It stands to reason.' It's deeply entrenched. 30 years ago the businessman with a stomach ulcer from stress was a media trope.
  2. J

    ME mentioned in Sunday Times (UK) article about BBC presenter Kirsty Young's fibromyalgia

    This is the kind of article I hate. Trying to be sympathetic but perpetuating the psychological myth. https://www.thetimes.co.uk/article/kirsty-young-must-go-softer-on-herself-during-break-from-desert-island-discs-2pkjdbfbn Includes: I worry, though, that Young’s affliction is a form of...
  3. J

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    I note you haven't addressed the factual error about AfME's involvement only starting in 2007 which I raise here. https://www.s4me.info/threads/action-for-me-the-pace-trial-and-behavioural-treatments-for-m-e-position-statement.5532/#post-99817 If you want evidence, I can provide you with the...
  4. J

    Watt from MRC defends PACE in letter to Times

    I saw that and think it's an interesting story. Did her experience of standing up for bullied researchers make her more open to believing the harassment of PACE researchers stuff?
  5. J

    Watt from MRC defends PACE in letter to Times

    I've just been looking at that site: First, only researchers at institutions can access it, and it was you patient scientists who revealed the flaws in PACE. Second, any new analysis has to be set out beforehand, so no digging around in the data to sniff out problems, and the data cannot be used...
  6. J

    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    I think this is really welcome and thank @Action for M.E. I would just point out that the support for the trial was from before 2007. It started in 2002 with a letter of support to the MRC and the first meetings of the TSC were in 2004.
  7. J

    Watt from MRC defends PACE in letter to Times

    That's very interesting. The PDF of Sensky's 1990 is here http://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC1662417&blobtype=pdf They are in effect saying that our belief we're ill is our illness and the more we insist on our illness, the more ill we are. It's an extraordinary position.
  8. J

    Watt from MRC defends PACE in letter to Times

    Damn. I'll send another to them asking to make those corrections and add you.
  9. J

    Watt from MRC defends PACE in letter to Times

    Damn. Sorry, Graham. I'd did delay it a while. I should have waited till tomorrow morning. It has gone off now. I would have been happy to add you.
  10. J

    Watt from MRC defends PACE in letter to Times

    No, I suspected some may, so haven't sent yet. Still time if you let me know full name to be used (could message me in private, if you want).
  11. J

    Watt from MRC defends PACE in letter to Times

    Thanks again everyone for the input. In light of the comment from @dave30th and others, this is the final, final version: Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial...
  12. J

    Watt from MRC defends PACE in letter to Times

    Thanks everyone for the input. This now is the final version. If anyone wants me to add their name, please say so and in what form. I'm away from the computer for a bit and will send when back, some time this evening. Sir, We are surprised by Professor Watt's wholehearted and inaccurate...
  13. J

    Watt from MRC defends PACE in letter to Times

    The CDC changed its website and advice this summer.
  14. J

    Watt from MRC defends PACE in letter to Times

    I addressed this above: The CDC and FDA say there are no treatments. The NIH and American healthcare guidelines both reject all research based on Oxford and PACE played no role in the IOM report.
  15. J

    Watt from MRC defends PACE in letter to Times

    How about then: Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial steering committee and the peer-review, and the speed with which the main paper was fast-tracked by The Lancet...
  16. J

    Watt from MRC defends PACE in letter to Times

    I agree we shouldn't overstate, but I don't think we should be overcautious either. The reanalysis didn't find any evidence. The CDC and FDA say there are no treatments. The NIH and American healthcare guidelines both reject all research based on Oxford and PACE played no role in the IOM report.
  17. J

    Watt from MRC defends PACE in letter to Times

    Could leave that out then. Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial steering committee and the peer-review, and the speed with which the main paper was fast-tracked by...
  18. J

    Watt from MRC defends PACE in letter to Times

    I think Tom is right. How about a shortened version: Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. Questions have been raised about the independence of both the trial steering committee and the peer-review, and the speed with which the main...
  19. J

    Watt from MRC defends PACE in letter to Times

    I hadn't realized her KCL connection. I think that must have played a role. I also think we're seeing how the system works once a trial has been conducted and published: everything then swing in its favour as all the institutions involved have a massive interest in defending it, not least the...
  20. J

    Watt from MRC defends PACE in letter to Times

    How about this @Jonathan Edwards and others? Sir, We are surprised by Professor Watt's wholehearted and inaccurate defence of the PACE trial. The trial steering committee contained members with a financial interest in the outcome of the trial and several others with an allegiance to the model...
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