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I started off on all this because of this Nest scheme. I was hoping that my house would be eligible. It's owned and 'D', but ME is not listed as included in the illnesses. I contacted AfME to see if they knew. They didn't. I also spoke to the CAB, but they didn't either. I called Nest today...

Absolutely. But then again I suppose the history of the last 35 years or so of ME/CFS is a bit weird.

Carson is a vigorous (some may put that more strongly) defender of the behavioural approach to ME and the whole Wessely narrative on Twitter.

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’ Chris Ponting There is a city nearby that we hide from view. Its people are of all ages, ethnicities and classes. What unites them is a disease: all are diagnosed with myalgic...

I think this is a really interesting point and one that sometimes gets overlooked in the history of the last few decades. We associate the behavioural approach with psychiatrists, principally he-who-shall-not-be-named of course, but actually it's always been a psychological approach. I often...

Thanks for all that @Kitty

I have now had an phone appointment from my local CAB. She said that there have been some claimants who have voluntarily transferred, received the UC and extra payment without an assessment and then been brought in 6 months' later for a full assessment. They especially bring in those who have...

I think that the Nicholas J. L. Brown is our own @sTeamTraen

Yes, it was that Nature article I remember. I had an email exchange with her. She has personal experience of the illness (ie member of family, though not sure how close) and I got the impression this experience was the same as that of Fiona Fox's ie they thought the family member had a mental...

I think that is very interesting. For their model to work then there had to be some kind of transferable treatment. There had to be a form of CBT-GET that was more than just 'we worked with some patients and were able to help them to do more'. But they've never been able to define that...

Article in The Times (London) today. Miranda Hart: I was bedbound with illness for years after TV success The comedian and actress suffered from ME caused by Lyme disease Miranda Hart has told how undiagnosed Lyme disease, which developed into myalgic encephalomyelitis (ME), left her...

Thanks, Jo. That's very encouraging.

Yes, thanks to @Jonathan Edwards and Sonya.

Thanks again, John, that is interesting. I think I may email my local CAB and see if they've heard any horror stories, and if not, I may do it.

Long Covid nearly broke me. Now I’m curing fellow sufferers Matt Rudd Dr Ben Sinclair, a super-fit GP, became so ill after contracting coronavirus he could barely move or talk. Now he has opened pioneering clinics fighting a disease that afflicts more than two million people in the UK...

Rumour has it Sonya is looking forward to the meeting and may have checked out this thread in advance.

That's really interesting, John. Thank you. I've been checking mine and it says I would be better off as well. How easy was it to migrate? Did you have to fill in a load of forms? Did you have any assessment or have to show bank statements and things?

Column by Sean in today's Times Streeting must act to give ME patients the care they need. So it falls to two other recipients of this report — the health secretary, Wes Streeting, and the public health minister, Andrew Gwynne — to take the necessary action. They have the authority to order...

I didn't know about that. That's appalling.

The report has now been posted online. https://www.judiciary.uk/prevention-of-future-death-reports/maeve-boothby-oneill-prevention-of-future-deaths-report/ (HT: @Lucibee )