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  1. J

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This may help answer those questions. https://www.coyneoftherealm.com/2017/06/07/nice-guidelines-are-discrepant-with-meta-analyses-and-based-on-political-considerations-an-exchange/
  2. J

    man with Axis Hypersomnia

    Indian man sleeps 300 days a year. https://www.indiatoday.in/india/story/rajasthan-rare-disorder-axis-hypersomnia-kumbhkarna-1829228-2021-07-17 From (£) https://www.thetimes.co.uk/article/rip-van-winkle-of-india-sleeps-for-three-weeks-out-of-four-qg89w9v9l
  3. J

    Article and Documentary BBC: Long Covid: Early findings bring hope for diagnostic tests

    From the article: Is it possible to measure accurately how my brain anticipates and monitors what I do?
  4. J

    ME Epidemiology - prevalence and peak ages of onset

    That's interesting, because going back to the 80s and early 90s, 100,000 was the figure generally used.
  5. J

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    I did a brief search on Newman. She has done previous work for the BMJ. She's also written articles for 'The Bureau of Investigative Journalism' on FII. EG: https://www.thebureauinvestigates.com/stories/2018-04-18/treating-fii-the-gosh-approach...
  6. J

    Stuart Ritchie, science journalist, articles on science fraud and open science

    How the Lancet lost our trust Stuart Ritchie The Spectator (UK) 26/06/2021 A few of us have tried to get Ritchie interested in the PACE trial, but he has previously refused. But since it now seems to support his argument, he does cautiously mention it...
  7. J

    Preprint: The Rise And Fall Of The Wessely School, 2021, Marks

    Someone who helped him has already mentioned this.
  8. J

    PACE Trial application to MRC for funding in 2002

    All the material I obtained from that FOIA request is now available here. https://www.mediafire.com/folder/d5tryetu1l2mn/MRC
  9. J

    Can anyone help finding the MRC application for the PACE Trial

    Tom, one file is 20MB, so I have done an upload. Everything I got from that FOI is here. https://www.mediafire.com/folder/d5tryetu1l2mn/MRC
  10. J

    Can anyone help finding the MRC application for the PACE Trial

    Pretty sure I got that with an FOI. I'll check files and get back to you.
  11. J

    ME Awareness Day / Week / Month, May 2021

    Direct link to ME Awareness Week page: https://measussex.org.uk/me-awareness-week-may-10-to-16th/
  12. J

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    Coyne likes to quote this study. Active Albuterol or Placebo, Sham Acupuncture, or No Intervention in Asthma https://www.nejm.org/doi/full/10.1056/nejmoa1103319
  13. J

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    And in fact they showed this in the SMILE trial. They used the same flawed trial design as they had for PACE to test outright woo and found it too had the same effect: it didn't change the underlying illness but succeeded in persuading a small number of patients to say that they felt a bit better.
  14. J

    Let’s end the stigma of psychosomatic illness The Times (London) 22/04/2021

    Thanks for the responses. I finally got a thread written on Twitter to send him and his account has been deleted. Did he get a bit of a pounding on there after the article?
  15. J

    Anticipation of and response to exercise in adolescents with CFS: An experimental study, 2021, Loades, Chalder et al

    They should provide this on request. They should also automatically treat such a request under the FOI. If you have no luck @PhysiosforME post back and let us know what they say.
  16. J

    Let’s end the stigma of psychosomatic illness The Times (London) 22/04/2021

    Column (paywalled) by James Marriott in The Times. https://www.thetimes.co.uk/article/lets-end-the-stigma-of-psychosomatic-illness-whfdlwhph Anyone know whether that 'a third of outpatients...' is right? Or where it's from? @dave30th perhaps? I think the article shows what we're up against...
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