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  1. J

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Thought this was an interesting point, given the history of links between BPS crowd and insurance companies.
  2. J

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Merged thread The Times: Letter from I think this Matthew Dryden (link to page on Twitter) in Times this morning: And then article reporting the letter. Private clinics ‘cash in with false Lyme disease diagnoses’...
  3. J

    The UK Covid Inquiry - 2023 onward

    This thread has been created by merging threads and copying posts form UK news S4ME and the UK Covid Inquiry I'm still not spending much time online unfortunately so this may have been discussed elsewhere. Apologies if it has. As those of us in the UK are aware the Covid Inquiry is just...
  4. J

    The Rise and Fall of the Psychosomatic Approach to MUS, Myalgic Encephalomyelitis and Chronic Fatigue Syndrome, 2022, David Marks

    Yes, I know David has been working on this for some time and put in a lot of work, so thank you.
  5. J

    OpenAi's new ChatGPT

    I see you've been asking it as well. I hadn't seen this before asking two questions: Q: Are the claimed findings sound of the 2011 paper Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE)...
  6. J

    Pain in facial nerves

    Thanks, Jo. I do often get discomfort in my mouth which seems linked to nerves and so this didn't seem completely unusual, sort of on the spectrum of what sometimes happens if at one end of it. Happily it has now largely passed. I often find these symptoms flare up and then subside. The...
  7. J

    Pain in facial nerves

    Thanks NP. It has now passed.
  8. J

    Pain in facial nerves

    Bizarre symptom #53. For a few days in 2008, I had the most intense pain I have ever experienced. I have smashed my elbow on a pothole, been driven into when on my bike by a car going at 30+mph, broken both bones in my forearm, been smashed up on rugby pitches in several countries, but nothing...
  9. J

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Straight after the news: Garner being Garner. [edited with correct link - Paul Garner] At 1:05 here. https://www.bbc.co.uk/sounds/play/m001bb8m
  10. J

    United Kingdom: Science Media Centre (including Fiona Fox)

    A bit of a tangent from the current discussion, but From https://splitsandfusions.wordpress.com/2022/04/02/living-marxism-the-mag-they-could-not-gag/ Link to dropbox with the copies: https://www.dropbox.com/sh/jqo6cj3swx9rnlx/AACsv0ZK7MDspNf_W3QHVqSba?dl=0
  11. J

    Long Covid in the media and social media 2022

    Is aromatherapy the answer to long-COVID? I fear not! Blog post by Edzard Ernst. https://edzardernst.com/2022/06/is-aromatherapy-the-answer-to-long-covid-i-fear-not/ Unblinded, self-report trial funded by interested party finds treatment effective. As some said about PACE and pointed out again...
  12. J

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    Moved post Record two million people in the UK have long Covid The Times, London 02/06/2022 (Paywalled) https://www.thetimes.co.uk/article/record-two-million-people-in-the-uk-have-long-covid-mw7z2nlp8
  13. J

    Lidocaine infusions for refractory chronic migraine: a retrospective analysis, 2022, Schwenk et al

    https://rapm.bmj.com/content/47/7/408
  14. J

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I haven't had any dealings with Holgate and those I respect (such as Simon and Andy) speak highly of his recent work. My own impression is that the appeal to authority works with him. If the 'experts' tell him that it's psychosocial and treated by GET-CBT and patients are dangerous militants...
  15. J

    Long Covid in the media and social media 2022

    Article (paywalled) in The Times (London) on how longitudinal studies are being used to look at Long Covid. https://www.thetimes.co.uk/article/twins-help-solve-long-covid-mystery-nr268jpw0
  16. J

    Use of tranexamic acid in major trauma: sex-disaggragated analysis of trials & UK trauma clinics, 2022, Nutbeam et al

    Full title: Use of tranexamic acid in major trauma: a sex-disaggragated analysis of the Clinical Randomisation of an Antifibrinolytic in Significant Haemorrhage (CRASH-2 and CRASH-3) trials and UK trauma registry (Trauma and Audit Research Network) data...
  17. J

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Letter from Holgate in Times today. Can't help thinking there is some rewriting of history from Holgate who took instruction from Wessely, supported White, endorsed the 'dangerous militants' nonsense and backed Crawley for years.
  18. J

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Merged thread Letter in The Times (London) Chowdhury, Strain 18/05/2022
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