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    The Intricate Web of Fatigue in Women, 2021,Mathis

    "Oh my stahs, I do believe I feel a faint coming on." (dramatic hand to forehead followed by delicate slump onto fainting couch conveniently at hand) But seriously - where has this person been all their life that they can come up with such ridiculous drivel?
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    Post COVID-19 Syndrome in Patients with Asymptomatic/Mild Form, 2021, Malkova et al

    Rant - In order for me to be able to understand articles about what happens to people after they have acute COVID-19 infections I need to know what they are actually referring to. For me that means appropriate naming of the condition/disease and defining it/them! I have seen PASC, LongCOVID...
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    Comparison of Persistent Symptoms After COVID-19 and Other Non-SARS-CoV-2 Infections in Children, 2021, Roge et al

    This paper refers to mood swings and irritability as cognitive sequelae. It also feels as though it gives little attention to impaired memory and impaired attention and concentration problems. They acknowledge using an unvalidated questionnaire and had no objective parameters at evaluation.
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    Improving images used to depict ME/CFS

    I believe MEAction and Solve(?) each have a project underway to build a set of photos that are more appropriate.
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    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    The careful adjudication that ID'd PwME further emphasizes the need for education of healthcare professionals at every level and every stage of learning/practice.
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    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    I think you should urge Nath to do so! (Please tell him to!)
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    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    @Hutan said "The selection of patients was very restrictive - they needed to fit CCC, Fukuda and IOM criteria. The requirements including being sick less than 5 years, aged less than 60, and to have an infectious cause documented in medical notes were restrictive." Just to clarify - not only did...
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    Webinar: Massachusetts ME/CFS & FM research update - 23 October 2021

    Question (to anyone) - would the research being done by the CRCs have been funded by NIH had they been submitted as part of the SEP grant review process (and not been part of the CRCs)?
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    Neurochemical abnormalities in chronic fatigue syndrome: a pilot magnetic resonance spectroscopy study at 7 Tesla, 2021, Godlewska et al

    I know male PwME who have hyperhidrosis and similar to @Kitty have had to change top half clothing with great frequency. Have also heard that some of these folks who also have POTS have had sympatholysis done in the thoracic region to try to ameliorate the POTS and as a "side effect" it has...
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    A Comprehensive Examination of Severely Ill ME/CFS Patients, 2021, Chang et al

    I am not clear as to why Figure 1 in this article uses both ME/CFS and CFS?
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    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    Could early completion also be because deterioration among participants was increasing in frequency as were the #s of those dropping out? [ETA - not that I am suspicious or anything....]
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    Long-Term Symptoms Among Adults Tested for SARS-CoV-2 — United States, January 2020–April 2021, 2021,

    Also posted at https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19-long-covid.14074/page-237#post-373090
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    CDC article (MMWR) on long-term symptoms among adults https://www.cdc.gov/mmwr/volumes/70/wr/mm7036a1.htm?s_cid=mm7036a1_w PEM is mentioned and defined as "Worsening of symptoms after even minor physical, mental or emotional exertion." No discussion of onset, duration, severity.
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    Covid-19 vaccination experiences

    Just noting that COVID also causes myocarditis at higher rates than vaccination.
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    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    One of the BIG problems is that there is no consensus definition of LongCOVID. I would hope such a definition would take into account things like impaired sense of smell/taste as being "minor" symptoms and would have agreed upon required symptoms, severity and frequency.
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    Covid-19 vaccines and vaccinations

    Risk factors and disease profile of post-vaccination SARS-CoV-2 infection in UK users of the COVID Symptom Study app: a prospective, community-based, nested, case-control study...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The vaccines do not provide 100% immunity from infection. Asymptomatic people (as well as symptomatic) can develop LongCOVID. I am not sure how one can say vaccines fully protect against LongCOVID though I do see how the risk of LongCOVID is reduced in those fully vaccinated....
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