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I wonder why they use "chronic fatigue syndrome" or "CFS" in the research questions. (for example, A2.1, A3.11, B4.7)

I thought this quote was intriguing “...Available therapies for some adults with long COVID include rehabilitation,35 but the optimal exercise prescription is contentious because of concerns of post-exertional symptom exacerbation. ...” Especially given that a member of the writing group...

Definition used for cohort?

Yikes! Table 1 Proposed progression in re-starting physical exercise [27]. Stage Length and proposed training Stage 1 Day 1 and 2. 2 days minimum Sessions of 15 min or less Light exercise. Do not get over 70% of maximum cardiac frequency. Endurance training is not allowed Stage 2 Day 3. One day...

Requiring a positive test makes getting a diagnosis pretty difficult in many countries. Yet only having to have one symptom is pretty broad..... "putting the little hurdle, after the big hurdle" (quote from a PwME in my household)

I know they have something about PEM on their site but at least until recently they disavowed ME as a follow-on to some LongCOVID. Has that stance changed?

US Department of Health and Human Services has issued some PSAs (public service announcements) on YouTube (don't know if they are also airing on TV etc) about vaccination as a means of helping prevent LongCOVID COVID-19 Survivor Story: Katelyn - :15 - YouTube COVID-19 Survivor Story: Rob -...

As if the unpredictability of symptoms isn't sufficient reason for the person to have anxiety....

Very little that CDC has done throughout the pandemic has felt right.

ME is supposedly not as mysterious as fibromyalgia but fibromyalgia has FDA approved treatments and ME has none.... Sigh!

I am sorry you have to play "the heavy". Please be careful about your energy expenditure and try to not harm your health!

Oh good grief! I am biting my tongue/holding back my fingers to refrain from saying/typing what I am really feeling about this. (Perhaps it should have a warning that it may trigger elevated BP?)

I don't know if this VELPEAU Neck Brace -Foam Cervical Collar - Soft Neck Support Relieves Pain & Pressure in Spine - Wraps Aligns Stabilizes Vertebrae - Can Be Used During Sleep (Comfort, Blue, Large, 3.3″) would be of any benefit in terms of not letting your head move too quickly? I hope...

Translation: Here. Have a pittance. Be grateful you get THIS [paltry] amount. Now be quiet. Totally insufficient amount to truly make a difference in the lives of PwME especially with the rapidly increasing #s of PwME post-acute COVID.

David Bell's follow-up also found that much depends on how one defines recovery....

I am "sure" he just means he is taking more time these days to "smell the roses". (IF, of course, his sense of smell is not impaired by LC.)

Several good quotes in this and the closing statement is among them. "While post-COVID clinics are starting to emerge, it will be an important part of managing this and planning for future pandemics that we ensure these clinical efforts succeed. It would only be just and equitable to ensure that...

True, it is a start. IF the parents and teachers make the connection between activity one day and PEM - especially if delayed.

The child could be sitting perfectly still (or even laying down) at school and be over their activity limit especially if they were trying to learn new material.

I admit to generalized (and specific worry) every time I see Chalder's name....