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paywalled https://www.sciencedirect.com/science/article/abs/pii/S0003999322012254 FWIW - this abstract is all there is.

@Haveyoutriedyoga would the communication cards at https://batemanhornecenter.org/education/mecfs-guidebook/ be of help?

This study does NOT apply to ME as it uses Fukuda. That Natelson says in the background that this applies to (ME)/CFS , ME/CFS is not acceptable. Honest question - how is it that he continues to stick to Fukuda? He was on the IOM (NAM) committee.... He didn't write a dissent (that I can...

I am not sure if the authors have considered that quite a few people with ME (mentioned in the article) take melatonin to try to regulate their sleep and yet it has NO effect on cognition, myalgia, fatigue, PEM, etc..... Goodness knows it'd be great if there were such a simple treatment for...

I wonder why it refers to ME/cfs as myalgic encephalitis/.... I hope that gets corrected....

@Simon M is right!

"Well sure, they have executive dysfunction, but really that's such a trivial thing.... " Haven't read the article so I don't know what sort of counseling they are talking about... (BPS or counseling to refer to specialty practitioners?)

"...Only every fourth had exercise intolerance..." ONLY (25%)? That's A LOT of people with exercise intolerance!

I am probably being oversensitive but I am irritated that the authors go back and forth between using ME/CFS and CFS.

The NIH post re Fauci's departure https://www.nih.gov/news-events/news-releases/statement-anthony-s-fauci-md

Yes, in theory CDC is supposed to do surveillance. In practice, as we have seen, with ME they have refused to do so. In theory this project would be a good thing but as the school nurse presenter at IACFSME said, the project thus far has failed to identify anyone with ME. [Likely because there...

As others have said, most people cannot access a TTT, but a 10 minute lean test is accessible. In the recent (July 2022) National Academy of Medicine report on Selected heritable disorders of connective tissue and disability, the committee commissioned a chapter (Appendix B) from Peter Rowe...

Truly disgusting and horribly dismissive of the reality of ME!

While I understand the desire to have a journal that focuses on ME (and certainly the Fatigue journal does not do so exclusively), I wonder how that exclusivity would affect broad access? Would researchers/clinicians [ETA institutions] etc subscribe to it or would it only be accessed by...

"Meet the Institute of Medicine (Canadian Consensus Criteria) case definition for ME/CFS" The IOM criteria are not the CCC. Did they leave out "or" in front of Canadian....?

Even if it is true that delta is more likely to trigger LC, the sheer number of people who have gotten omicron (and many have gotten it more than once) means the numbers of PwLC are greater than those who got delta. And little, if any investigation has been done about repeat infections and...

NOTE - The JAN pages have been updated - there are now 2 pages - one entitled About Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (https://askjan.org/disabilities/Myalgic-Encephalomyelitis-Chronic-Fatigue-Syndrome.cfm) and the other entitled About Chronic Fatigue Syndrome/Myalgic...

I don't see anything about children in this document?

I find the JAN pages problematic as they refer to ME as cfs, the diagnostic criteria is still Fukuda, PEM is not thoroughly described and many of the links and resources are outdated.

Ah yes! We can ALWAYS take NIH at their word, can't we? (Like in their (purported) commitment to ME and such....) Sigh!