Search results

Is there any possibility these percentages were referring to PwME as well as healthy controls???

"ACKNOWLEDGEMENTS We gratefully acknowledge the participants for sharing their stories, sometimes at great cost to their daily functioning. We thank K. Hartley and P. Garner for providing feedback on the study design, interview guide, and results based on their lived experience with ME/CFS. We...

https://onlinelibrary.wiley.com/doi/10.1111/jep.13938 Not a recommendation. (In fact, I'd stay away from sharp objects while reading or thinking about this.)

@Hoopoe Are you thinking of these studies with transcranial doppler and ME? https://www.sciencedirect.com/science/article/pii/S2467981X20300044 https://www.mdpi.com/2227-9032/8/4/394 [I am certain I put the links in the first time but when I came back they weren't there.... Ah well... I hope...

Some info about US access to Paxlovid https://www.hhs.gov/about/news/2023/10/13/hhs-and-pfizer-reach-agreement-to-increase-patient-access-to-paxlovid.html

I know of several people who are getting the imaging and tests done for CCI and of a few others who have recently had the surgery. I also know some people who have measurements that would qualify them for surgery but have chosen not to do so (at least for now). As with so many things, lots of...

And there are those who cannot raise their arms (as well a having other biomechanical issues) and have lots of fatigue, cognitive problems, OI, easily triggered PEM, etc....

It's a shame this overlaps with the NIH Roadmap webinar on the immune system (https://event.roseliassociates.com/me-cfs-research-roadmap/agendas/)

With the understanding that no document is perfect, how did Solve feel their document improves upon these for from MEAction https://www.meaction.net/wp-content/uploads/2021/02/Pacing-and-Management-Guide-for-ME_CFS-9.pdf...

I appreciate the effort but can't help feeling this is too long, and several things suggested are not really within the control of many PwME (accessing and preparing healthier foods for example, controlling the temperature and humidity in one's surroundings.... these and other things can cost a...

Given that many people with ME are pretty sedentary because of the limitations ME imposes, it is likely that many of these people are at risk of osteoporosis and might be taking meds for that. Would it have made sense to survey the population first (before studying in depth) to see what effects...

This is one of the articles I give to healthcare practitioners on a regular basis. They get a lot out of it! Thank you so much @Wilhelmina Jenkins !!

The CAD inhibitor work is part of the itaconate shunt hypothesis.

There are plenty of PwME on anticoagulation therapies - would they not have seen an improvement in their cognitive function if what this study says is true?

The authors are at one of the RECOVER sites (though I haven't looked to see if they are in any way part of RECOVER) @Dakota15 ?

@Dolphin Apparently registration is no longer required (per this page https://event.roseliassociates.com/me-cfs-research-roadmap/calendar/) It should NOT require digging around to find this out though.... Grrrr!

Of course they passed up the opportunity to have PEM/PESE (spelled out in words) as a symptom.... it could have been an opportunity for people to look it up and learn more about what they are experiencing. (Can't have that now, can we?)

SO true! People with dementia can often hide it for it a long time.

ME was mentioned in 5.4% of submitted comments but as far as I can tell (have only done a cursory skim of the article) is not mentioned in the discussion or conclusions sections of the article.

This $9.5 million grant (over 5 years) looks pretty much like a follow-on to the 2017 $9.4 million grant for the CRC. This is just one of the NIH funded CRCs though. I wonder what the details are on the others and on the data center?