Search results

:cookie::coffee::hug:

:emoji_ski: :emoji_footprints: :emoji_ice_skate: :emoji_feet:

Symptom-Limited Activity Pacing? The awareness campaign could be "SLAP ME" :D

I think there was a paper last year which also created a new terminology as an alternative approach to GET. The biggest problem was that they were claiming the usual safeguards used for GET (heart rate monitoring, done under professional supervision, etc) do not apply because their new form of...

In this case it sounds like she stabilized and improved a bit, but hasn't recovered. She cannot do things like a normal person would, without having to worry about the consequences. Basically, it sounds like she's pacing and can do a bit more due to that.

Has her folate levels been tested? Eating a lot of vegetables would usually mean that folate levels are doing great, but "mostly vegetarian" doesn't always mean lots of vegetables, as my own little cousin nicely demonstrated :rolleyes: Dance and lacrosse might simply not be feasible, and the...

We are the most modest patients anywhere. So modest, so very modest. We are THE BEST at being modest :cool:

They might lack the technical knowledge to question what they're told. It's a big problem in judicial systems as well. Basically they have to trust that they're being told the truth, or bring in a expert, which doesn't always work out well either.

Maybe the people who know how to use it don't want anything to do with the PACE quacks? :-P

They probably had some spare cash on hand after hawking the actometers :-P

I'd noticed that :-P On the plus side, the trolls were extra daft and easy to refute.

Generally very good, especially this bit: The usual quackery plug (hey, it's the Daily Mail after all): It sounds like she's improved and/or stabilized, not recovered: I think Dr Charles Shepherd did a great (and diplomatic) job of pointing out the same issues with the cause and extent of...

If QMUL isn't willing or able to maintain trial data, they should not be allowing their staff to conduct research as part of their university.

His failure to use a complete absolute is not a concession that he believes exercise may ever be harmful to ME/CFS patients. Here's the full context of that passage: His "maybe exercise should be avoided" statement is about as meaningful as conceding that "maybe aliens cause ME", because...

I'm especially skeptical of hypotheses which have been beaten to death, such as the HPA axis and central dysfunction, which are both being combined by this group. It doesn't help that their "Science" intro sounds over-simplistic ... and I certainly haven't seen them demonstrating a "deep...

His following sentence is already dismissing it: "In general such advice is counterproductive, and must be set against the following...." Do you have the link to the paper?

Oh goody, ME/CFS is a neuropsychiatric disorder now :rolleyes:

As far as I can tell, the gene is only expressed in the brain. So a drug targeting it would be acting in a purely central manner - which only cures the disease if there's no peripheral pathology.

Their website doesn't even seem particularly coherent, much less indicate any plausible mechanism for a drug affecting the HPA axis to impact upon PEM, OI, muscular pain, etc. I think they're very unlikely to come up with anything useful when they're starting with implausible assumptions about...

No. Someone quoted him saying something sort of like that, but Wessely was raising the possibility solely to dismiss it. He was not stating or agreeing that GET could be harmful.