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I agree - it's a waste of everyone's time. But the alternative to arguing it is to let those lies stand unopposed, and potentially leave others with the impression that there is no opposition. Or we could emulate other forums and delete such content so there's no need to argue with it. No...

Do you have evidence for these claims? Why do you think that? Because a disparity suggests systematic problems, with hiring and promotion, and/or with social perceptions of women's capabilities. What's the basis for your assertion? No, we don't. The ones going into research-oriented fields...

Dates of stuff happening: This sounds good: Learn what the fucking disease is, NICE. Even their own crappy criteria are better than this description:

NICE's "do not do" guidelines need to take a long walk off a short pier, along with whoever contributed to or approved them :expressionless:

For recovery, the protocol CFQ bimodal threshold for recovery was a score of 3 or less. In the published recovery paper, they changed that to a likert score of 18 or less. Only 89 patients (out of the 607 for whom there are CFQ scores at 52 weeks) qualified as recovered on the CFQ using the...

They might want to ask him, if they haven't already. When other ME clinicians have been asked about support regarding similar persecution from authorities, they have expressed a preference to handle it on their own through official processes. A bunch of patients coming together to support a...

Still sounding rather passive aggressive - the implication is that patients can't possibly do as good as job describing PEM as he supposedly has, and he's looking forward to eventually claiming that any such instrument is inferior to the PEM questions on his.

Does Dr Visser want support at this time? And is this the form of support that he wants?

I think you can keep a Facebook account pretty anonymous if you want to - basically don't give them real information, even if they say you have to.

I think the issue is that the threshold on the likert scale wasn't directly comparable to the threshold on the bimodal scare. The result was that it did lower the bar a bit for recovery, though I'm not sure how much practical effect that had by itself. I can take a look at my copy of the data...

Would an open letter to recent funders or likely future funders of research happening at QMUL possibly be of use? Basically warning them of the issues at the university which are documented in the FOIA response, and pointing them to the coverage from David Tuller or any experts in the realm of...

Which project was that? Which study? This one involves adults.

Nick Brown is associated with James Coyne, so is well aware of PACE no doubt :-P

That would seem to support that "improvements" are due to bias built in to the therapies. CBT is about denying your fatigue, so fatigue questionnaire scores improve. GET is about believing you can do more, so physical functioning questionnaire scores improve. The effect on the SF36-PF was even...

I'm not thrilled with the term "biobehavioral" either. It's basically BPS with more focus on the biomedical aspect, but still focused how behavior can (be changed to) impact health. I'm not sure why physiological results, with no behavioral intervention involved, are being described as...

Probably one of Yolanda Hadid's (Dutch-American reality star and model) daughters, also a fashion model. Yolanda was diagnosed with ME and/or Lyme at some point, and I think a couple of her kids had similar issues.

I have to fully support my elbows as well, so my shoulders aren't carrying any weight at all while I'm sitting. Basically I sit semi-cross-legged and slump forward, with my elbows just above the inner side of my knees. Then I can also rest my forearms on the desk or keyboard laptop while typing.

It sounds like they're looking for something else to fund instead now:

Already done last week: My understanding is that it's already fairly well-accepted that PACE was substandard science, to say the least, and this is now about demonstrating the real-world impact it has had on patients. Hopefully it will give them a reason to oppose such bad practices in the...

Some 2nd-rate minds growing up around 1st-rate minds seem to feel a lot of pressure to do something that other people will view as being exceptional. Privilege usually goes with that upbringing, if the parents are high-earners as a result of their skills. Then the 2nd-rate minds seem to have a...