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So it is completely focused on the Perrin stuff, which gives it a rather promotional slant: They used NICE criteria for diagnosis, so it's not particularly clear if PEM was a mandatory symptom. Patients were also "assessed" for ICC criteria, but it doesn't sound like it was mandatory to...

Yes, by their logic, every disease was the same disease until technology advanced enough to prove otherwise. They're doing philosophy, not science.

Occupational therapy is rooted in and focused upon helping people to undertake an occupation. It can have a lot of behavioral focus as well, which is no doubt well-intentioned in many cases, but can also be used abusively in a BPS framework. Parts of it are useful and can be essential in...

A very good illustration of the problems with copyright law in the US. No one should be threatened with decades in prison and eternal poverty for downloading journal publications. Copyright is not more important that people's lives.

We don't have rules regarding language, and I think it's fine for people to post in something other than English if they're more comfortable doing that. People can use Google Translate to get a decent understanding of what's been said. Though proper translations of library and help pages might...

But the government won't do that, since ATOS is doing the job which the government paid them to do. If they are not violating their contract with the government, then they probably can't be punished for what's happening. Pulling out of a contract is almost always a violation of that contract...

Might be easier to focus on a specific time frame, which excludes the first year or two when the disease is establishing itself. It was definitely progressive relapsing in the first 6 months for me, then mellowed out a bit to primary or secondary progressive. I seem relatively stable now, so...

I don't think it's an accident, and the judge probably doesn't either. The current system has been created specifically to deny benefits to people entitled to them, while denying that anyone is accountable for the improper denials. The government is passing the assessments to someone else, so...

I would've guessed extra spicy :emoji_smirk:

I think it's worthwhile for well-designed research. For disability purposes, if someone scores poorly enough on day 1, there shouldn't be a need to do another one 24 hours later.

I wouldn't call it abuse, but Emily Beardall and another guy were pretty unpleasant on Facebook. People asked AfME why they didn't sign the open letter to Psychological Medicine asking them to retract the PACE recovery paper. Beardall said it was a conspiracy designed to make AfME look bad...

VO2 max. I seem to be doing a bit better since starting IgG 5 months ago. Yeah, my "resting" heart rate was already high at the start, at 91. When I'm really rested it'll be around 75-80. I think that can throw off the VO2max calculations, but from what I recall it would have lowered my...

Meh. Not bad, but it'd be a lot better if the author had any idea what she was talking about :p It reads like a school report on a subject the student is completely disinterested in. She does make a few useful points though, and it's good to see PEM sort of mentioned: And any recommendation...

Mine was 11.9, or 34% of what it should be for a woman my age. My RER was well above the minimum threshold needed to objectively indicate maximum effort.

Not really ... there is impairment, regardless of cause. Fatigue is a symptom. Symptoms are caused by a disease or other states. Symptoms are not caused by symptoms, though multiple symptoms may have the same source. So I don' think it makes any sense for a state to be a symptom of a...

Obviously they were just accommodating the patients who had to lie down to watch :D But it got fixed after a few minutes.

The ICC and CCC both have neurological symptoms in their diagnostic criteria, and the ICC includes GI symptoms as well. SEID includes cognitive impairment, which would probably be classified as neurological.

Not sure why they excluded neurological and GI symptoms from the CFS group, however. Are they using Fukuda still?

Indeed, correlation does not prove causation, and the authors address this point in the Discussion: But it's pretty well established via 2-day CPET, and listening to any patient, that onset of the disease precedes a lack of exercise. So while it's possible some abnormalities might be more...

A lot of us have trouble watching videos. Especially ones which might induce nausea or cause us to hurl objects at the screen :-P