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  1. Valentijn

    Relinquishing Control in Health Care | Dr Laura Marshall-Andrews & Chris Dance | TEDxBrighton

    This is the sort of fluff I hate seeing applied to ME, and I doubt it's much better in a general medical context. This seems to be intended as psychotherapy: What sort of "wellbeing"? Where's the evidence for it? Again, they're suggesting an impact on physical health without any proof...
  2. Valentijn

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I'd welcome sane psychiatrists. Unfortunately ME seems to attract the other sort.
  3. Valentijn

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    This isn't research - it's a sale pitch. He has multiple such patents, and is completely resistant to using appropriate methodology. He writes papers to support his business, not to learn anything about ME/CFS or what works to treat it.
  4. Valentijn

    Neurolinguistic programming (NLP)

    But even if NLP isn't applied to ME or altered to be the form used in LP, hasn't the research shown it to be useless in general? Wikipedia states: So it seems that the scientific consensus is that NLP is pseudoscience. If you disagree, could you explain your basis for that disagreement?
  5. Valentijn

    Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: It's Mitochondria, Not Hypochondria - by Sarah Myhill

    They also don't give scores, for the most part, or correct for making multiple comparisons outside of the symptom comparisons within the patient group. They also only had BMI data for one-third of patients, which seems dodgy as hell since it's an extremely easy thing to measure and calculate...
  6. Valentijn

    House built on old golf course - yes or no ?

    Typically the condos which have balconies on the upper floors will also have a smallish amount of private garden for the owners on the ground floor. Though then you have to deal with neighbors, HOA, etc. Indoor noise shouldn't be a problem with newer ones, unless cheaply constructed.
  7. Valentijn

    How many hours of sleep a night do you need? - Now with Poll

    That's been my experience. NAC has a short half-life, so sustained release is useful in that regard.
  8. Valentijn

    Five patients made 8,303 emergency calls in a year - BBC News Website

    Seattle had a good solution to a similar problem which saved a lot of money and even reduced alcohol usage for homeless people with severe alcoholism who were heavy users of emergency and police services. Basically they built an apartment building for them, allow them to drink without...
  9. Valentijn

    House built on old golf course - yes or no ?

    Another option could be a ground floor condo, or the ground floor of a over-under duplex. I think she's probably right. If you have more space then you need and can take care of, perhaps you could rent out a room at a reduced rate to a young relative or similar in exchange for a bit of help...
  10. Valentijn

    How many hours of sleep a night do you need? - Now with Poll

    I take NAC too (Jarrow extended release) and it makes a big difference in my ability to fall asleep and stay asleep. Basically it seems to shut down the "wired" phenomenon. The wiredness can get unpleasant during the day as well, so I also take it three times per day.
  11. Valentijn

    Action for ME - New sponsor - The Haywoods group

    Perhaps they've confused tackling with embracing? It certainly could get awkward in the wrong situations.
  12. Valentijn

    Action for ME - New sponsor - The Haywoods group

    Has anyone suggested to AfME that they might want to stop using Oxford criteria to describe ME? :-P
  13. Valentijn

    Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: It's Mitochondria, Not Hypochondria - by Sarah Myhill

    I wouldn't particularly have a problem with her advice, except that it's phrased as the roadmap to "recovery." That's a nasty and exploitative expectation to create.
  14. Valentijn

    Article in French Newspaper «J'écris ma souffrance pour affirmer que je suis vivant malgré tout»

    Yes, obviously that's bullshit, but it can be useful bullshit. It makes it look as though the answer is obvious to the rest of the world, and therefore the French are definitely wrong about ME/CFS and they should be embarrassed to be so backwards. Basically it's peer pressure, on an...
  15. Valentijn

    Any experiences with chronic sinusitis?

    I've had it about 5 years I think. It went away while I was on antibiotics, but came back afterward. The one lasting benefit after the antibiotics has been that I don't get sinus infections anymore.
  16. Valentijn

    Correspondence from the DWP for 2003

    I suspect they see it more like hysteria or neurosis than MS or RA. With "secondary gains" thrown in to blame us for wanting to be sick. They've reduced the cure for ME to being a mere matter of willpower on the part of the patients. Changing our thoughts is therefore always considered curative...
  17. Valentijn

    Trial By Error: A Letter to BMJ Open

    COPE never had noble intentions - their structure and rules have been formulated to act as a rubber stamp for the members (journals) and silence the public criticism of those journals when they commit ethical violations.
  18. Valentijn

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    AfME seem to be taking a move from the BPS playbook and are redefining "defamatory" to suit their purposes. A statement is never defamatory if it's true, and opinions about someone would also not be defamation. Activism from ME patients has hostile organizations like the CMRC and AfME under...
  19. Valentijn

    Esther Crawley

    2 are in psych departments, not counting Crawley, who's a stealth-psychobabbler.
  20. Valentijn

    (Oxford,UK) Recruiting: A study looking into energy status & MRS in CFS

    They'll prove what they want to prove regardless. That's the joy of badly flawed methodology - you can eliminate the impact of any unwanted variables, like the actual disease which patients have, and still get the desired outcome.
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