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  1. Valentijn

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    Patronizing, condescending, paternalism, coercion, duress.
  2. Valentijn

    Disability News Service: "DWP U-turns on PIP mobility rules that were based on ‘unsupported opinions’"

    That's how reading about the UK benefits application process makes me feel anyhow :-P
  3. Valentijn

    Elevations of ventricular lactate levels occur in both chronic fatigue syndrome and fibromyalgia, 2017, Natelson et al

    Bicarbonate IVs are used in hospitals. There's some speculation that drinking bicarbonate can also help, but there's a lack of evidence for that and it doesn't make a lot of sense. I think the main approach is to avoid getting elevated lactate levels in the first place.
  4. Valentijn

    Elevations of ventricular lactate levels occur in both chronic fatigue syndrome and fibromyalgia, 2017, Natelson et al

    It's like a glucose meter for diabetes, but takes a lot more blood :p It's pretty easy, though strips are expensive - about 2 euros each I think. It has been helpful in confirming that lactate is a problem for me, and doesn't behave like it should, which indicates that I should probably avoid...
  5. Valentijn

    Article: Nature, "Robust research needs many lines of evidence", Marcus R. Munafò and George Davey Smith

    He resigned from the Journal of Health Psychology in a huff when it published the PACE special edition. I suspect his current drive for good methodology is the usual two-faced bullshit we get from that sort of people ... they pay lip service to good science in the effort to make a name for...
  6. Valentijn

    Elevations of ventricular lactate levels occur in both chronic fatigue syndrome and fibromyalgia, 2017, Natelson et al

    When a diabetes med gave me symptoms of lactic acidosis, the headache was unlike anything I'd experienced before. It was a burning pain which really felt like my brain was soaked in acid. I couldn't think coherently during the worst of it. Those symptoms peaked about 12 hours after stopping the...
  7. Valentijn

    Elevations of ventricular lactate levels occur in both chronic fatigue syndrome and fibromyalgia, 2017, Natelson et al

    It weakens the controlled aspect, since having controls tested at the same time and in the same manner can indicate if there was a problem or major difference due to the specific equipment or procedures used.
  8. Valentijn

    BBC Radio Scotland: Brainwaves, "ME - The Invisible Disease"

    Sounds like the Yasko methylation forum - only positive posts allowed, no hard questions or disagreement :-P
  9. Valentijn

    BBC Radio Scotland: Brainwaves, "ME - The Invisible Disease"

    Yes, the PPP doesn't fit well (most glaringly in regards to perpetuation), and I think it's a mistake to try to squeeze ME/CFS into that hole. It also cedes ground to the psychosomatic brigade by arguing on the field of their choosing. Instead of debating what the supposed "perpetuating...
  10. Valentijn

    BBC Radio Scotland: Brainwaves, "ME - The Invisible Disease"

    There's no strong evidence of specific predispositions yet. Additionally, predispositions can be a dangerous territory with any disease, as there's a habit to blame lifestyle factors (and the victim) unless there's a 100% genetic cause or similar. Regardless, any talk about perpetuating factors...
  11. Valentijn

    The Scientism of Psychiatry

    True, but I think he's also suggesting that psychiatry is not capable of being studied scientifically, when it's also (treated as) something entirely subjective. So psychiatry could be the victim of both psuedoscience and scientism. In their failure to do the hard work and fully embrace...
  12. Valentijn

    The Scientism of Psychiatry

    Terminology aside, the article makes some very good points:
  13. Valentijn

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    TEDx and TEDxBristol don't seem to be saying anything. But Esther Crawley's talk is still listed, described, and linked with the others on TEDxBristol's site, so maybe it's TEDx who decided to hide it under the bed? Amusingly, Crawley's talk is far less popular (down votes versus up votes) than...
  14. Valentijn

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Probably - promotion of the talks and TED is the whole point of putting them on Youtube. It might be hard to find them (which is the point) but a very short external list included: All three seem to have some basic nonsense in their contents. The head transplantation one had this note...
  15. Valentijn

    MEA Summary Review: The dysfunctional autonomic nervous system in ME/CFS

    Generally it's only diagnosed as POTS if blood pressure remains fairly normal - otherwise there's a clear cause for the tachycardia, as it's compensating for the hypotension. Treating hypotension with POTS drugs would probably be a complete disaster.
  16. Valentijn

    Elevations of ventricular lactate levels occur in both chronic fatigue syndrome and fibromyalgia, 2017, Natelson et al

    Mostly to force people to buy access to the full paper I suppose :-P Though in this study they were combining results coming from different methods and using different scales. So instead of having numbers, we have z-scores. More generally, they used Fukuda, and it looks like they combined data...
  17. Valentijn

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Esther Crawley's talk is now "Unlisted" on youtube, instead of "Public". So basically anyone can watch it, but it won't turn up in any search results on Google, Youtube, etc. The only way anyone will find it is if someone else links to it.
  18. Valentijn

    Biopsychosocial seminar in Norway (June 2018)

    Sure... just as soon as "most of you" are as disabled as "most of us". Though with any luck, these quacks will soon be accepting that they do not meet government standards for gainful employment :rolleyes:
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